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What you should know
Patients & Families
Learn about chordoma, find helpful resources, take action to find a cure
Researchers
Connect with colleagues, access reagents and data, find funding
Healthcare Professionals
Information for managing chordoma & opportunities to advance research
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The One in a Million Benefit: Helping give others with chordoma a future
Create your own Facebook fundraiser to support the chordoma community
Behind the Changing Landscape of Chordoma Research and Treatment with Joan Levy, PhD
Sites for Epizyme’s tazemetostat trials continue to reopen to enrollment
Learn from Experts
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What are the most important things a chordoma patient should know?
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What should chordoma patients look for in a treatment team?
Clinical Trials Catalogue
Explore trials for chordoma
Learn about clinical trials that are enrolling chordoma patients and find out if one is right for you.
Doctor Directory
Find a specialist
Search our Doctor Directory of nearly 150 chordoma specialists from around the world to find an experienced care team.
Tumor Donation Program
Donate tumor tissue
Advance chordoma research by donating tumor tissue to the Chordoma Foundation Biobank. Each chordoma tumor is valuable for research.