WE ARE HERE TO HELP
If you or someone you care about is dealing with chordoma, our Patient Navigation Service can answer your questions, explain treatment options, help you find qualified doctors, and more.
Leading the search for a cure
We proactively and strategically initiate, manage, and fund research across the globe to accelerate the development of effective treatments and ultimately a cure for chordoma.
What you should know
Chordoma Foundation Updates
First clinical guidelines for management of recurrent chordoma published in the Annals of Oncology
We want to know what you want from an online community
Becoming a Chordoma Champion is now even easier
New Board committee formed to help drive programs that serve the chordoma community
Watch the stories
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Josh's story
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Sharon's story
Featured champion
Norma Jones and Susan Garbett
Learn how Peer Guides like Norma and Susan serve as a guiding light to others in the chordoma community, generously sharing their experience and knowledge.
Featured researcher
Christian Mosimann & Alexa Burger
The husband-and-wife team uses zebrafish as a model for human cancer research, including chordoma and their innovative approach resonates widely in the community.
Chordoma Biobank
Contribute to Our Biobank
Patient tumor tissue is critical for research needed to find a cure. Our Biobank enables patients to help advance research by donating excess tumor tissue.