Chordoma Foundation


If you or someone you care about is dealing with chordoma, our Patient Navigation Service can answer your questions, explain treatment options, help you find qualified doctors, and more.


Leading the search for a cure

We proactively and strategically initiate, manage, and fund research across the globe to accelerate the development of effective treatments and ultimately a cure for chordoma.

Explore our research portfolio

What you should know

Chordoma Foundation Updates

Watch the stories

  • 2015-05-28_13-27-28
    Josh's story
  • Accelerating the Search for the Cure: Sharon Berlan
    Sharon's story

Featured champion

Potempa Family

“We want to support the Foundation so it can help other families facing this challenge,” says Noreen Potempa, wife of a chordoma patient.

Read more »

Featured researcher

Silvia Stacchiotti, MD

At the Istituto Nazionale Tumori in Italy, Dr. Stacchiotti leads one of the most active sarcoma and chordoma practices in the world.

Read more »

Chordoma Biobank

Contribute to Our Biobank

Patient tumor tissue is critical for research needed to find a cure. Our Biobank enables patients to help advance research by donating excess tumor tissue.

Learn how to contribute »