WE ARE HERE TO HELP
If you or someone you care about is dealing with chordoma, our Patient Navigation Service can answer your questions, explain treatment options, help you find qualified doctors, and more.
Leading the search for a cure
We proactively and strategically initiate, manage, and fund research across the globe to accelerate the development of effective treatments and ultimately a cure for chordoma.
What you should know
Patients & Families
Learn about chordoma, find helpful resources, take action to find a cure
Researchers
Connect with colleagues, access reagents and data, find funding
Healthcare Professionals
Information for managing chordoma & opportunities to advance research
BLOG
The hope I have is because of you
You’re not alone. We’re on your team. Meet the members of #TeamChordoma
Afatinib trial now open at second site
New educational resources developed to help make sense of treatment options for chordoma
Learn from Experts
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What are the most important things a chordoma patient should know?
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What should chordoma patients look for in a treatment team?
Clinical Trials Catalogue
Explore trials for chordoma
Learn about clinical trials that are enrolling chordoma patients and find out if one is right for you.
Doctor Directory
Find a specialist
Search our Doctor Directory of nearly 150 chordoma specialists from around the world to find an experienced care team.
Tumor Donation Program
Donate tumor tissue
Advance chordoma research by donating tumor tissue to the Chordoma Foundation Biobank. Each chordoma tumor is valuable for research.