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Get support and connect with others

The Chordoma Foundation and many chordoma survivors are here to support you throughout your entire journey with chordoma, from diagnosis through to survivorship.

You are not alone

We're committed to helping patients and caregivers every step of the way with our personalized Patient Navigation Service, an uplifting online community, Peer Guides, international Ambassadors, and a range of educational and support events.

Connect with our Patient Navigators

Our Patient Navigators have extensive knowledge about chordoma and its treatment and are available at every step of your chordoma journey to answer your questions, provide information about treatment guidelines, help you find qualified doctors, and connect you with others in the chordoma community.

Talk with a Navigator

Join our online community

Chordoma Connections is our private, online community where chordoma patients and their loved ones can come together to share experiences, ask questions, and support one another.

Join Chordoma Connections

Get matched with a Peer Guide

If you’re interested in talking to someone who has been through a similar chordoma journey, our Peer Connect program can help.

Register for Peer Connect

Attend a virtual support group

In our support groups, you can come together with other people affected by chordoma to support and learn from one another, make new connections, and exchange information.

Find your group

Connect with our international Ambassadors

Our international volunteer Ambassadors help chordoma patients and their families outside the U.S. connect with local resources — and each other.

Connect with our Ambassadors

Attend a Chordoma Community Conference

Chordoma Community Conferences are a time for patients and their loved ones to come together to learn about the latest advances in chordoma research and treatment, connect with one another, and take action to achieve our shared vision for a better future for those affected by chordoma. Chordoma Community Conferences provide unique opportunities to hear directly from leading chordoma doctors and researchers and to meet a community of peers who share similar experiences.

Join us in Boston on July 14-15, 2023 for the next International Chordoma Community Conference!

Uncommon Stories

Our Uncommon Story series offers the opportunity to read what others have learned during their journeys with chordoma so that you can know what you might expect throughout your own. And when you're ready, you can share your own experience with the community!

Read their stories