2022 Annual Report
Owning our destiny
Setting the stage for much faster progress
Among other milestones, 2022 was the year we launched Chordoma Foundation Labs — and with it, finally gained the ability to translate discoveries into new treatments at a pace that matches the sense of urgency we feel.
2021 Annual Report
One in a million, but not alone
Fifteen years of progress, connection, and hope.
In the years since our founding, together we’ve changed much of what it means to face chordoma. And while the urgent need remains for new treatment options, we’ve never been more optimistic about what’s on the horizon.
2019 Annual Report
Going all in
It's time to seize the moment for chordoma.
A confluence of recent advances has created unprecedented opportunities to deliver the first effective treatments to chordoma patients alive today.
2018 Annual Report
More progress, more hope
Setting the bar for catalyzing progress against a rare disease.
Like compounding interest, the accumulated impact of our work together has made possible more progress on more fronts than ever before. And with that progress, more reasons to be hopeful about the future.
We pride ourselves on being a responsible steward of your donations and take a deliberate, milestone-based approach to investing in science and services that improve lives and accelerate cures. Our commitment to excellence in financial management and transparency is recognized by Guidestar.
As a 501(c)(3) tax-exempt organization, donations to the Chordoma Foundation are tax deductible (Tax ID: 20-8423943). To learn more about tax-deductible contributions see IRS Publication 526. State licensing information can be found here.
IRS form 990
The IRS form 990 is the annual tax return that nonprofits in the U.S. submit to the Internal Revenue Service. It provides detailed information about a nonprofit’s income, expenses, and operational activities, allowing donors to evaluate how effectively the nonprofit is performing.
Every gift adds up to better options for patients
We've put a plan in place to make chordoma a manageable disease. With the help of everyone affected, we could get there in time to help people facing chordoma today.