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Peer Connect

Support from someone who has been there can make all the difference. Peer Connect is our free, confidential peer-to-peer support program that connects anyone touched by chordoma with another person whose experiences with chordoma are similar. Trained Peer Guides are available to support chordoma patients who are newly diagnosed, patients in active treatment, survivors, caregivers, family members, or friends.

  1. Support
  2. Peer Connect

Get matched with a Peer Guide

If you’re interested in talking to someone who has been through a similar chordoma journey, Peer Connect can help. Once registered, we will match you with a trained Peer Guide who has had similar experiences and who has had to face many of the same challenges that you now face.

All Guides are trained to provide a listening ear, serve as a sounding board, and if requested, suggest helpful information and resources.* The connection between you and your Guide may involve only a few phone calls, or it may develop into a longer relationship — whatever is most helpful for you.

Benefits of the Peer Connect program:

  • Connect with someone who has been through their own chordoma journey
  • Get support as you learn about treatment options and find care
  • Explore resources to address quality of life challenges
  • Be heard and supported

Meet our Peer Guides

Our team of Peer Guides is comprised of members of the chordoma community who volunteer with the Chordoma Foundation to be matched with fellow patients or caregivers who need emotional support along their journey with chordoma. Peer Guides provide a listening ear, serve as a sounding board, and suggest helpful information and resources, if requested.

*Guides do not serve as health professionals and can not provide medical advice. By participating in the Chordoma Foundation Peer Connect program, you acknowledge that you understand the program is for support purposes only and does not provide medical, legal, or psychological advice, diagnosis, or treatment. The Peer Connect program may provide helpful health-related information, but it is not intended to substitute for professional advice, diagnosis, or treatment.