An experimental treatment changed the life of a courageous young chordoma survivor
As the youngest child in a family of California dairy farmers, Frankie Fernandes was used to waking up early. But … Continue reading
Latest Updates
New Medical Advisory Board Chair helps usher in new era of clinical research
We are thrilled to announce the appointment of Dr. Shreyaskumar “Shreyas” Patel, Medical Director of the Sarcoma Center at MD … Continue reading
Survey reveals common symptoms and challenges faced by those living with chordoma
The first ever large-scale analysis of symptoms and life challenges caused by chordoma was recently published in the Quality of … Continue reading
You’re making progress possible
Your support is making a real difference in the lives of individuals affected by chordoma, and propelling research toward better … Continue reading
Peer power: Two Guides, dozens of life-changing relationships
Since 2011, our Peer Connect Program has united the chordoma community and fostered life-changing relationships between individuals affected by this … Continue reading
Expert Answers Series expands with three new videos
Making sense of chordoma isn’t easy. As discerning patients and concerned loved ones, we know you work hard to learn … Continue reading
Upcoming Chordoma Community Conferences announced
In April 2008, about 60 patients and caregivers gathered in Bethesda, Maryland, for the first ever International Chordoma Community Conference. … Continue reading
Chordoma Foundation earns 4-star rating from Charity Navigator
The Chordoma Foundation was started to give individuals and families who hope for a better future for those affected by … Continue reading
Now open: immunotherapy research study designed specifically for chordoma patients
Nivolumab + stereotactic radiosurgery A new clinical trial has opened for chordoma patients with advanced or metastatic tumors testing a … Continue reading
New $25,000 prize available for pediatric chordoma cell lines
Since the Foundation’s inception, a key part of our strategy to advance chordoma research has been to ensure that scientists … Continue reading