Turning pediatric chordoma into a curable disease
Thanks to the generosity of our supporters, significant advances for chordoma patients are being made along multiple paths. Continue reading
Latest Updates
Landmark paper reveals new therapeutic vulnerabilities for chordoma
In an exciting update, our grantees at the Broad Institute of MIT and Harvard have released a preprint presenting the … Continue reading
A personal health update from Executive Director Josh Sommer
Family Sixteen years ago, as an 18-year-old college student, I unexpectedly joined the small and not-so-sought-after club of people who … Continue reading
After surviving two major hits, athlete runs to raise money for the Chordoma Foundation
Ten years ago, Steven Mandel was recovering from the worst year of his life. In March 2012, he was nearly … Continue reading
“We’re not meant to do life alone”: Shari’s Uncommon Story
Shari led a busy life before chordoma, but the chronic pain that resulted from treatments has slowed her pace significantly. She’s found numerous ways to cope, and unexpected aspects to appreciate about this new chapter of life. Continue reading
How our Patient Navigator brings resources and connection to chordoma families
Introducing CF Labs: a faster engine for chordoma research
A big leg up for brachyury drug discovery
Dr. David Drewry. Photo by Jeyhoun Allebaugh/UNC-Chapel Hill Discovering drugs that strike at brachyury, the Achilles’ heel of chordoma, likely … Continue reading
New results from our Drug Screening Program presented at leading international cancer conference
Our Drug Screening Program enables researchers and companies to test promising drugs in chordoma cell and mouse models at a … Continue reading
“I can help people find a way through this”: Steve’s Uncommon Story
“There’s a time to say, ‘this sucks, this isn’t fair.’ But if you become so interior-focused, your mood collapses, so it helps to re-focus on the right things as you go through this. You can let it overwhelm you, or you can find a way through it.” Continue reading