Take our Chordoma Survivorship and Quality of Life Survey
Last month, we launched the Chordoma Survivorship Initiative, aimed at helping individuals affected by chordoma manage the physical, emotional, spiritual, … Continue reading
Latest Updates
We need to continue progress against chordoma
Ask the Experts Webinar: Join us on August 20
Do you have questions about chordoma and chordoma treatment that you’d like to ask chordoma experts? Join us for an Ask the Experts webinar! Continue reading
2019 Annual Report: Going ALL IN
Our 2019 Annual Report details how a confluence of recent research advances have cleared a path to identify existing treatments that could help chordoma patients in the near-term, and, incredibly, created a line of sight to the first treatments that strike at the Achilles’ heel of chordoma. It also tells how many in our community have rallied behind our recently-launched $16M ALL IN campaign to bring these unprecedented research opportunities to fruition, while at the same time helping patients and families confront chordoma with confidence and get the best care possible along every step of their journey. Continue reading
Improving lives after treatment ends: Introducing the Chordoma Survivorship Initiative
Thanks to advances in research, improvements in care, and access to more treatment options, more people than ever before are living with, through, and beyond chordoma. To more holistically support anyone who has been affected by chordoma, we are proud to announce the launch of a new Chordoma Survivorship Initiative. Continue reading
Impact Update Webinar
COVID-19 has paused many aspects of life, but it can’t pause cancer or the support that patients and caregivers need. … Continue reading
Going ALL IN – The Mainey’s Story
Before Chuck Mainey was diagnosed with chordoma in 1999, he and his family — like many affected — had never heard of it. … Continue reading
Chordoma community invited to participate in the Natural History Study of Rare Solid Tumors
The ongoing challenges presented by the COVID-19 pandemic have interrupted and altered medical research across the globe. While some scientists have had to halt their studies abruptly, others can forge ahead thanks to virtual options. The chordoma community is one of many rare disease communities invited to participate in one such study, the Natural History Study of Rare Solid Tumors, currently underway at the National Cancer Institute (NCI). Continue reading
Coronavirus: Special considerations for chordoma patients
As we all contemplate how the novel coronavirus (COVID-19) might affect our lives and our communities, I want to take … Continue reading
The Chordoma Foundation and The Mark Foundation for Cancer Research fund open-source research to accelerate drug discovery following recent breakthroughs
The Chordoma Foundation (CF) and The Mark Foundation for Cancer Research (MFCR) announced today a two-year, $1.4M partnership with a team of researchers at three institutions to develop new treatments for chordoma, a rare and difficult-to-treat bone cancer. The researchers will focus on creating the first drugs to inhibit a protein known as brachyury. Continue reading