Latest Updates
A time of great momentum
Go ALL IN with us!
Over the past dozen years, this community has transformed chordoma from a completely neglected disease into one for which extraordinary … Continue reading
Frequently asked questions answered in four new Expert Answers Videos
Every day, patients and caregivers come to the Foundation looking for answers to important questions about chordoma and its treatment. … Continue reading
Welcoming new board and committee members
We’re excited to announce some fantastic new additions to both our Board of Directors and our Board’s Patient Services Committee. … Continue reading
The One in a Million Benefit: Helping give others with chordoma a future
Chordoma caregiver and fundraiser Noreen Potempa gave an inspiring talk at our Chordoma Community Conference at Northwestern Medicine in Chicago … Continue reading
Create your own Facebook fundraiser to support the chordoma community
Five easy steps to start a Facebook Fundraiser Click Fundraisers in the left menu of your Facebook News Feed Click … Continue reading
Behind the Changing Landscape of Chordoma Research and Treatment with Joan Levy, PhD
Originally published on the Cancer Research Institute blog. By Arthur N. Brodsky, PhD Sarcomas are an aggressive type of … Continue reading
Sites for Epizyme’s tazemetostat trials continue to reopen to enrollment
In the ten months since the U.S. Food and Drug Administration (FDA) lifted the partial clinical hold it placed on … Continue reading
A Patient Perspective: Susan Garbett
Chordoma survivor and advocate Susan Garbett gave an impassioned talk during last month’s Chordoma Community Conference at Northwestern Medicine in … Continue reading