Community fundraisers turn passion into action
As a patient-driven organization, our success depends on the initiative of supporters like you. Over the years, our amazing community … Continue reading
Latest Updates
Five new members join the Community Advisory Board to help guide patient programs and services
Originally formed in 2016, the Chordoma Foundation’s Community Advisory Board (CAB) has served as a critical source of input and … Continue reading
Expert Answers Webinar recording now available on YouTube
Making a decision about clinical trial participation On Thursday, June 7, the Chordoma Foundation hosted our first Expert Answers Webinar. … Continue reading
Now open in Europe: Targeted drug therapy trial for patients with advanced or metastatic tumors
This is a derivative of “Leiden University Medical Center” by Dmflan and is licensed under CC BY 3.0 A new Phase … Continue reading
Promising chordoma-specific immunotherapy trial now open at two sites
Launched last spring, a Phase 1 clinical trial studying the safety and initial effectiveness of the immunotherapy drug nivolumab with and … Continue reading
Top 10 Takeaways from 6th International Chordoma Research Workshop
In March of 2018, 140 doctors and scientists from more than ten countries and 70 institutions braved a nor’easter to … Continue reading
Heard in Boston: Highlights from 2018 International Chordoma Community Conference
Our 2018 International Chordoma Community Conference in Boston brought together more than 100 patients, family members, doctors, and researchers from … Continue reading
Chordoma Foundation presents poster at American Association for Cancer Research’s 2018 meeting
Last month, Director of Research Joan Levy and Manager of Research Patty Cogswell joined more than 20,000 scientists, clinicians, and … Continue reading
Chordoma is a solvable problem. Join me in being part of the solution.
I was a high school senior when chordoma blindsided me. It hit me at a point in my life when … Continue reading
Register Today: Clinical Trials Webinar on June 7
When should I consider participating in a clinical trial? How do I evaluate which clinical trials are best for me? … Continue reading