CF Annual Report: More progress, more hope
We are excited to share our latest Annual Report, which details how your support made more progress possible in 2018 than … Continue reading
Latest Updates
Positive result from ongoing BN-Brachyury clinical trial prompts expansion
We are excited to share a promising milestone in the Foundation-supported Phase 2 BN-Brachyury trial. Yesterday, we received confirmation from … Continue reading
Strengthening our Board
We’re delighted to announce the addition of three new members to our Board of Directors (BOD), each of whom brings … Continue reading
Reflections on the first Pediatric and Young Adult Chordoma Clinic
Last month, on April 16-18, the first-ever chordoma-specific clinic for pediatric and young adult patients was held at the National … Continue reading
The hope I have is because of you
As I write today, I am twelve years distant from my initial diagnosis of chordoma. At the time, the news … Continue reading
You’re not alone. We’re on your team. Meet the members of #TeamChordoma
“I know that the race will be jovial and meaningful because it will be a connected experience for all of … Continue reading
Afatinib trial now open at second site
Launched last summer, a Phase 2 clinical trial testing the effectiveness of the targeted therapy afatinib is continuing to enroll … Continue reading
New educational resources developed to help make sense of treatment options for chordoma
Making sense of chordoma and how to manage it can be challenging and overwhelming. It raises numerous questions whose answers … Continue reading
National Cancer Institute to host a pediatric and young adult chordoma clinic on April 16-18
We are thrilled to share an upcoming opportunity for pediatric and young adult patients – up to age 39 – … Continue reading
New paper confirms that brachyury is the Achilles’ heel of chordoma, and reveals a new way to attack it
I’m excited to share the findings of a new paper published earlier this week in the journal Nature Medicine that … Continue reading