Our Chordoma Community Day series brings connection, learning, empowerment and hope right to your doorstep.
Chordoma Community Day attendees will learn practical tools and strategies for navigating life with chordoma, hear inspiring stories from our community, and have the life-changing opportunity to make lasting friendships with others affected by chordoma who live in your area. You'll also learn about the latest in chordoma treatment and research.
We look forward to seeing you, expanding and deepening our community ties, and creating a space where everyone affected by chordoma feels supported and included.
The registration fee for this event is $50, which includes refreshments, snacks, breakfast, and lunch. If you need assistance with the cost of registration, please contact us at events@chordoma.org.
Additional Note: We’d also like to highlight that the Team Chordoma: 5K/10K/half marathon will take place nearby on Sunday, October 5. We encourage attendees to consider participating in both events if you're able to as it promises to be a meaningful, fun, and memorable weekend! Learn more and pre-register here.
Agenda
We are in the process of finalizing the agenda. Please check back to this page for updates and sign up for our newsletter to stay informed.
Session topics will include:
- Living with chordoma
- Connecting with others
- Chordoma research and treatment updates
- How to get involved
There will be a dedicated Meet & Connect session to share, ask questions, and get to know others in the chordoma community.
What to know
Location and time
The Westin Jersey City Newport
79 Washington Blvd, Jersey City, NJ 07310
Saturday, October 4, 2025
9:00am - 4:30pm EST
Lodging
CCD Room Block: The Westin has kindly arranged a room block with the discounted rate of $359 per night (plus applicable taxes and fees) for the nights of October 3 and 4.
To book, please visit the link here and reserve by September 4, 2025.
Parking
The Westin Jersey City Newport offers daily valet and self-parking (SP+ Newport South Garage) options. Please note that parking is not included in the registration fee.
Additional event
The Team Chordoma: 5K/10K/half marathon will take place nearby on Sunday, October 5. We encourage attendees to consider participating in both events if you're able to as it promises to be a meaningful, fun, and memorable weekend! Learn more and pre-register here.