Newly diagnosed?
If you or someone you care about has recently been diagnosed with chordoma, we are here to help with answers to your questions, important steps to consider, and ways to get support.
What you should know
Chordoma Foundation Updates
First Chordoma Patient Meeting in Europe
Announcing the First European Conference on Chordoma
Wall Street Journal recognizes CF cell line prize as a model for stimulating research
CF launches national chordoma biobank
Watch the stories
Featured champion
Sue Johnson
As Sue Johnson contemplated how to mark her three-year cancer-free anniversary, she was pragmatic. The chordoma survivor and married mother of three knew she wanted to raise money for chordoma research...
Featured researcher
Dr. Soldano Ferrone
With a $25,000 grant from the Chordoma Foundation, Dr. Ferrone is working to destroy chordoma stem cells using antibodies developed by his lab. “By applying to chordoma what I have been doing for many years with melanoma and breast cancer, we can make quicker and more cost-effective progress”
Chordoma Biobank
Contribute to Our BioBank
Patient tissue is critical for research needed to find a cure. Our Biobank enables patients to help advance research by donating excess tissue. Learn how to contribute »








