Chordoma Foundation Praised in Health Affairs Article
After her mother was diagnosed with a rare cancer, Wall Street Journal reporter, Amy Dockser Marcus, began a quest for new ways to develop effective therapies for rare diseases. Her search led her to the Chordoma Foundation, which she profiles as a model of innovation in her essay The Loneliness of Fighting a Rare Cancer. Specifically, Dockser Marcus highlights the Chordoma Foundation's ongoing collaboration with the NIH Chemical Genomics Center to repurpose already-approved drugs to treat chordoma. Learn More »
New One-Stop Source For Chordoma Knowledge
To help make chordoma researchers more powerful, we've launched the Chordoma Research Wiki that will assemble and organize everything known about chordoma. All chordoma researchers are invited to contribute their knowledge to this continually growing resource. Learn More »
Research Breakthrough
Scientists Discover a Gene Responsible for Familial Chordoma
After thirteen years of research, the hunt for the genetic causes of chordoma has reached an important milestone with the discovery of a gene linked to familial chordoma. In a paper published in Nature Genetics, investigators led by Dr. Dilys Parry at the National Cancer Institute and Dr. Mike Kelley at Duke University report that duplication of the gene brachyury is a cause of familial chordoma. This discovery has important implications for chordoma and will open up a new frontier of research. The Chordoma Foundation salutes and thanks all the researchers involved in the familial chordoma study who have made this momentous discovery possible.
Join Our Online Chordoma Community
John Nelson, a chordoma survivor from New Jersey, has developed a new online social network to connect the Chordoma Community, and empower everyone to help bring about a cure.
Sign up for your own Champion Page today to connect with other champions around the world - you might be surprised to find someone new in your own backyard. Let's see how quickly we can fill in the map.