Chordoma Foundation

Expert Answers Series

Thanks to the support of our volunteers, Expert Answers Series videos are available with subtitles in the following languages:

Unless you have a medical degree – and possibly even then – making sense of chordoma and how to deal with it can be a real challenge.

Every day we speak with chordoma patients and their loved ones looking for answers to important questions. Over the years, we’ve gotten a good sense of which questions are the most common. From finding the right care team to understanding treatment options to getting emotional support, there are a number of practical challenges that most everyone affected by chordoma will face at one time or another.

You can get straight answers to those questions directly from leading chordoma experts and our community members through our Expert Answers Series. Whether chordoma is new to you or something you have been dealing with for a while, we hope this video series will provide greater clarity about this complex disease and help you make more informed decisions.

Expert Answers Series: Introduction

What are the most important things a chordoma patient should know?

What should chordoma patients look for in a treatment team?

How can the diagnosis of chordoma be confirmed?

When is a biopsy appropriate?

What types of radiation are used to treat chordoma, and how do they differ?

What drugs can be used to treat chordoma?

Can molecular tumor profiling be helpful in guiding treatment with drug therapies?

When should patients consider participating in a clinical trial?

Webinar: Making a decision about clinical trials

For more information, request help from our Patient Navigators at chordoma.org/request-help.

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The videos in the Expert Answers Series are for informational and educational purposes only. These videos are not a substitute for professional medical advice, diagnosis, or treatment. All care and treatment decisions should be made in consultation with a physician or other qualified health care professionals who are familiar with your specific health situation. Always seek the advice of your physician for any questions you may have regarding your medical care. Never disregard professional medical advice or delay in seeking it because of something you hear in a video or read on this website.



We are grateful for the support of Celgene in helping to make the Expert Answers video series possible, and to Global Genes for sponsoring the Expert Answers Webinar series.

Global Genes