Chordoma Foundation

Expert Answers Series

These videos are also available with subtitles in Dutch thanks to the support of CF Volunteers in the Netherlands.

Unless you have a medical degree – and possibly even then – making sense of chordoma and how to deal with it can be a real challenge.

Every day, we speak with patients, family members, and friends looking for answers to important questions. And over the years, we’ve gotten a good sense of what the most commonly raised issues are. From finding the right care team to understanding treatment options to getting emotional support, there are a number of practical challenges that most everyone affected by chordoma will face at one time or another.

You can get straight answers to those questions directly from leading chordoma doctors and experts through our Expert Answers Series. Whether chordoma is new to you, or something you or a loved one has been dealing with for a while, we hope that this video series will provide greater clarity about this complex disease and help you make more informed decisions.

Expert Answers Series: Introduction

What are the most important things a chordoma patient should know?

What should chordoma patients look for in a treatment team?

How can the diagnosis of chordoma be confirmed?

When is a biopsy appropriate?

What types of radiation are used to treat chordoma, and how do they differ?

What drugs can be used to treat chordoma?

Can molecular tumor profiling be helpful in guiding treatment with drug therapies?

When should patients consider participating in a clinical trial?

For more information, request help from our Patient Navigators at

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The Expert Answers video series is for informational and educational purposes only. These videos are not a substitute for professional medical advice, diagnosis, or treatment. The Chordoma Foundation strongly recommends that care and treatment decisions be made in consultation with a physician or other qualified health care professionals who are familiar with your specific health situation. Always seek the advice of your physician for any questions you may have regarding your medical care. Never disregard professional medical advice or delay in seeking it because of something you hear in a video or read on this website.

We are grateful for the support of Celgene in helping to make these videos possible.