Chordoma Foundation

You’re making progress possible

Your support is making a real difference in the lives of individuals affected by chordoma, and propelling research toward better treatments for this disease. With so many advances underway, it has been an exciting start to the year here at the Chordoma Foundation, and I wanted to take a moment to thank you for some recent milestones you’ve helped achieve:

YOU enabled our Patient Navigators to support a record number of affected individuals

Last month marked 1,000 patients and family members served since launching our Patient Navigation Service in 2015.

YOU helped us acquire and validate 5 new cell lines vital for research

This brings the total number of chordoma cell lines available to the research community to 20.

 YOU helped fund two clinical trials

One of which started last month and a second which will start this summer.

Thank you for helping to make this progress possible!

Looking ahead, we are working to ensure all chordoma patients, regardless of age, stage, or tumor location, benefit from the many scientific advances of the last 10 years. For example, with the help of a generous anonymous donor, we’ve recently begun working to better understand the differences in underlying biology between pediatric and adult chordomas, and the factors that might predict treatment response. To support this effort, we are now offering two $25,000 prizes specifically for cell lines derived from pediatric chordomas.

Having overcome many of the barriers that once stood in the way of chordoma research, the road ahead is wide open and the pace of progress has never been greater. Most importantly, we are beginning to see new experimental therapies impact the lives of patients.

We’re glad to have you on our team during this exciting time and look forward to continuing the momentum together!

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