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Share your Uncommon Story

Telling your chordoma story in your own words can help others in our community feel more connected and prepared to take on whatever may lie ahead. We invite you to use the form below to share your insights with others, who can benefit from knowing they’re not alone. We encourage you to reflect on both the ups and downs of your journey to give others a realistic sense of what they might expect.

(Stories may be lightly edited by our team for length and clarity.)


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Uncommon Story questions

The Chordoma Foundation values your privacy and will not sell or share your information with any other organizations.