In light of the continued unknowns with COVID-19 and to ensure the health and safety of all participants, we will once again postpone the next in-person International Chordoma Community Conference (ICCC). Previously scheduled for July 2021, the next ICCC will now take place in Boston, Massachusetts on July 14-15, 2023.
In the meantime, you can count on the Chordoma Foundation to continue providing interactive virtual content on the questions and topics impacting the chordoma community. In 2021, we are excited to host a Virtual Chordoma Community Conference (CCC) Series featuring webinars about some of the most common quality of life challenges you face.
Based on our ongoing Chordoma Survivorship Survey’s initial findings, each webinar will focus on a physical, emotional, or practical challenge that commonly affects patients, caregivers, survivors, and co-survivors. These free, live, one-hour webinars will feature expert clinicians and specialists who specialize in the challenge at hand and can help you understand the issues, learn what treatments are available, and find out how to access them.
As part of the Virtual CCC Series, we will again host a 90-minute “Ask the Experts” webinar offering real-time answers to any questions you may have about your chordoma journey. At our in-person Chordoma Community Conferences, the Ask the Experts Q&A panel is always one of the most valuable and well-attended sessions, and last year’s webinar proved to be the same.
2021 Virtual Chordoma Community Conference Series
April 7 at 3:00 PM ET
May
Dealing with cancer-related fatigue
July
Ask the Experts
September
Improving balance and mobility
November
Addressing anxiety, depression, and grief
2021 Virtual CCC Series: Options for comprehensive pain management
April 7 at 3:00 PM ET
Responses to our ongoing Chordoma Survivorship Survey show that, depending on tumor location, as many as 57 percent of chordoma patients and survivors experience chronic pain. But you don’t have to accept pain as a normal part of having chordoma. Join experts, Maryam Jowza, MD, Staci Martin Peron, PhD, and Sasha Knowlton, MD, to learn more about the type of pain you might be experiencing, where to get help dealing with it, and how the Chordoma Foundation can support you.