Chordoma Foundation

Celebrating the life-changing progress you’ve made possible

2017 has, by every measure, been an extraordinarily exciting year. It marks 10 years since a group of patients and family members came together to form the Chordoma Foundation with the hope of, one day, improving the odds for everyone affected by this terrible disease.

Thanks to your generous support over the past decade, that day is now.

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From removing the barriers that stood in the way of research, to engaging the best and brightest minds in the study of chordoma, to providing a reliable source of information and support to all those affected, our progress has only been possible because you made the decision to stand with us.

Together, we’ve come a long way in 10 years:

5,000+ patients and family members served
300+ researchers studying chordoma worldwide
120 labs supported 25+ disease models validated
20+ drug targets identified (& key driver discovered) 7 clinical trials planned
$6M+ invested in chordoma research 1st treatment guidelines published for chordoma


During this season of giving thanks, we want to express our sincere gratitude to you – because without your support, none of these life-changing advancements would be possible! Thank you for helping to improve the lives of those affected by chordoma, and propel research toward better treatments and a cure.

We are an uncommon community, and, together, we are making uncommon progress.

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