Chordoma Foundation

Get Involved

Each of us affected by chordoma has something to contribute to our shared mission, and we’re eager to help you get involved in all the ways that are right for you. We’re grateful to those who generously share their gifts of time, talents, and funds to create a better future for everyone affected by chordoma.

Drive research progress

  • Host a virtual or in-person fundraiser. Fundraising volunteers rally their personal networks to donate toward our efforts to find a cure for chordoma. Community fundraisers can dramatically improve treatments and outcomes. Get started »
  • Make a Perseverance Pledge. By making a recurring monthly gift of any amount, you’ll be a key driver of new discoveries that change the outlook for those facing this disease. Set up your Perseverance Pledge »
  • Participate in research studies. From donating tumor tissue to joining a remote study or a clinical trial, patient participation in research is essential to scientists’ ability to identify and test better treatments. Learn more »

Strengthen the chordoma community

  • Become a Peer Guide. Peer Guides volunteer to connect one-on-one with individuals affected by chordoma. By providing empathy and wisdom to others, you’ll form close personal ties that ease loneliness and stress. Our self-paced, online training program makes it easy to get started. Learn more and apply »
  • Join the ranks of our Ambassadors. As a global Ambassador, you’ll help chordoma patients and families outside the U.S. connect with local resources — and each other. You’ll also help distribute educational materials to medical centers and identify chordoma-experienced doctors in your country. Contact us for more info »
  • Share your chordoma story. Publishing your chordoma story in your own words can help others in our community feel more connected and prepared to take on whatever may lie ahead. Share your experience »

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