Thanks to the generosity of our supporters, significant advances for chordoma patients are being made along multiple paths. Continue reading

Researchers have identified two molecular subtypes of chordoma associated with different prognoses. They also found that the subtypes can be detected through blood samples, suggesting that someday chordoma diagnosis and prognosis could be determined without biopsy or surgery. Continue reading

For more than three decades, internationally renowned neurosurgeon Dr. Chandra Sen, the Bergman Family Professor of Skull Base Surgery at NYU Langone Health, has provided expert surgical care to patients with chordoma and other skull base tumors. Now, Dr. Sen – a longtime member of the Chordoma Foundation’s Medical Advisory Board – has assembled a team of researchers at NYU Langone to join him in a new initiative to advance chordoma science. Continue reading

We know that chordoma is a tricky adversary. So when a recent clinical trial testing a therapeutic vaccine came back with unsatisfactory results, we were disappointed, but wholly undeterred. After all, scientific progress is almost never linear — and perseverance is the name of the game in this community. Continue reading

An uncommon level of commitment from the chordoma patient community has been the key driver of new discoveries that are changing the outlook for this disease. There are numerous opportunities for each of us affected by chordoma to fuel research advances that will dramatically improve treatments and outcomes. Continue reading