I was diagnosed with chordoma of the clivus in December 2016. I had the tumor for at least nine...
Jeff’s Uncommon Story: Clival chordoma
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Uncommon Stories
Together, we can find hope and strength
Our welcoming and supportive community of patients and their loved ones have shared what they’ve learned throughout their journeys so that you can know what you might expect throughout your own. Below you will find the Uncommon Stories of people who are determined not to let chordoma define them.
You are not alone. You can give hope to others in the chordoma community by sharing the story of your own journey. Joined together in our Uncommon Cause, we can find the hope and strength to continue our search for a cure.
Gary’s Uncommon Story: Remaining positive while dealing with recurrences
My chordoma story started in 2000 when I felt a pain at the bottom of my back while sitting. My...
Allison’s Uncommon Story: The collective support of this group was a lifeline through some of my darkest of days
On a Friday afternoon in the fall of 2011, on my way to lunch with my husband Sean, I made a quick...
Heather’s Uncommon Story: This challenge helped me become even more of who I could be
My name is Heather and I am a Chordoma Survivor. Never did I think that, just over a year ago, I...
Doug’s Uncommon Story: I’m very sorry
I am 62 years old and have worked in hospitals since 1975, so I was used to being on the outside...
Annual concert, auction raise funds in memory of remarkable woman – and to provide hope to those still facing chordoma
One thing Alison Laird delighted in most during her eight-year battle with chordoma was proving...
Families raise funds in their children’s honor to advance chordoma research
Two families who know all too well what it is like to lose a child to chordoma are doing what they...
Sue J. swims for a cure
As Sue Johnson contemplated how to mark her three-year cancer-free anniversary, she was pragmatic....
Share your uncommon story
You can give hope to others in the chordoma community by sharing the story of your own uncommon chordoma story.