I was extremely lucky when I was diagnosed with a clival chordoma! Unfortunately, I suffer from...
Together, we can find hope and strength
Our welcoming and supportive community of patients and their loved ones have shared what they’ve learned throughout their journeys so that you can know what you might expect throughout your own. Below you will find the Uncommon Stories of people who are determined not to let chordoma define them.
You are not alone. You can give hope to others in the chordoma community by sharing the story of your own journey. Joined together in our Uncommon Cause, we can find the hope and strength to continue our search for a cure.
Share your uncommon story
You can give hope to others in the chordoma community by sharing the story of your own uncommon chordoma story.