Clinical Trials Catalogue
Clinical trials are carefully conducted research studies meant to determine the safety and effectiveness of a certain treatment. They are the way to know whether new treatments work so they can be approved to treat the disease.
For chordoma patients, some clinical trials may provide an opportunity to receive new, experimental therapies that could be more effective than currently available options. Other clinical trials may provide an opportunity for patients to gain access to clinically available therapies at no cost. In general, care provided through a clinical trial is very methodical and closely monitored by a team of healthcare professionals.
In addition to having the potential to benefit from the latest treatments, chordoma patients who participate in clinical trials contribute to knowledge that can guide treatment for future patients and potentially help identify new ways of treating this rare cancer.
Please note: Due to the ongoing COVID-19 pandemic, it is possible that clinical trials may be impacted. If you are currently participating in a clinical trial, contact your trial site to learn more about whether your trial will be affected. If you are interested in enrolling in a clinical trial, you and your doctor should contact the trial coordinator to learn whether the trial is still open to enrollment. We will update the individual trial listings below when we learn of any new information. Please contact our Patient Navigators at chordoma.org/request-help if there is any way we can assist you.
Below is a list of clinical trials designed specifically for chordoma patients or with chordoma-specific arms (in blue boxes), as well as other relevant trials recommended by the Chordoma Foundation’s Medical Advisory Board, based on scientific rationale (in grey boxes).
How to use the Clinical Trials Catalogue:
- We encourage patients who are considering clinical trials to show this list to their doctors to help guide discussions about trial options.
- Click on the plus signs (+) at the left of the trial listings for additional information about each trial, including links to clinical trial databases like ClinicalTrials.gov where you can find further information such as eligibility criteria.
- The chordoma-specific trials noted with the white Chordoma Foundation icon include links to FAQs pages we’ve created to provide you with more in-depth information about each trial.
The following trials are designed specifically for chordoma patients or are accepting a group of chordoma patients into a specific arm of the trial. These trials are open and currently enrolling patients unless otherwise noted. Trials noted with the Chordoma Foundation icon have been directly supported by our Clinical Trials Program.
Other trials for adult patients
The following trials are open to patients with multiple tumor types, including chordoma, and are currently enrolling unless otherwise noted. The Foundation’s Medical Advisory Board has determined that these trials may be relevant to chordoma patients based on available scientific evidence.
Other trials for pediatric and young adult patients
The following trials are open to younger patients with multiple tumor types, including chordoma, and are currently enrolling unless otherwise noted. The Foundation’s Medical Advisory Board has determined that these trials may be relevant to chordoma patients based on available scientific evidence.
Participate in the Natural History Study of Rare Solid Tumors
All chordoma patients, including those in active treatment, are invited to participate in the Natural History Study of Rare Solid Tumors, currently underway at the U.S. National Cancer Institute (NCI). By sharing your medical records and tissue samples and answering online surveys about your medical history and quality of life, you can help clinicians and scientists learn more about why and how chordoma progresses, ultimately aiding in the identification and development of new therapies to test.
Page last updated: August 26, 2020
The Chordoma Foundation cannot guarantee the completeness of this list of clinical trials, and details about clinical trials are subject to change. We update the information above as soon as the information is made available to us. For more information about clinical trials that you might qualify for, please contact a CF Patient Navigator at chordoma.org/request-help, consult with your physician, or visit ClinicalTrials.gov.
The information provided herein is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your or your loved one’s physician about any questions you have regarding your or your loved one’s medical care. Never disregard professional medical advice or delay in seeking it because of something you have read on this Website.