Chordoma Foundation

Tag Archives: Co-survivors

Iron-maniac: Chordoma Champion racing 10 Ironman triathlons in 10 days

When Kenny Brighton joined the Chordoma Foundation in 2019, his off hours were spent in training mode: preparing for a race involving 10 Ironman triathlons in 10 days. Then came the pandemic; race cancellations followed. Rather than let his preparation go to waste, Kenny decided to pivot, taking the event into his own hands — and legs. As we speak, he’s in the midst of a one-man “Ironman x 10” in the balmy Florida beach town where he grew up. Over 10 consecutive days, he’ll run, bike, and swim a mind-blowing total of 1,400 miles. Continue reading

Experiencing survivorship from the co-survivor’s perspective

Chordoma doesn’t just affect the individuals diagnosed; it also affects their loved ones. If you offer the crucial emotional, physical, financial, or spiritual support that someone with chordoma needs, you are a co-survivor. Continue reading

The One in a Million Benefit: Helping give others with chordoma a future

Chordoma caregiver and fundraiser Noreen Potempa gave an inspiring talk at our Chordoma Community Conference at Northwestern Medicine in Chicago … Continue reading

Surprise birthday celebration brings together friends, family, and fire-breathing belly dancers to raise money for chordoma research

It wasn’t a typical birthday party. When Daniel Kalenov arrived for a celebration of his 40th, he knew he’d be … Continue reading

Grateful for life-saving support, couple embarks on mission to champion research for others

Michael and Noreen Potempa had just retired and were looking forward to the next chapter in their lives together when … Continue reading

In Cameron’s memory: Family continues to raise money and awareness after chordoma takes their young son

Cameron Riccomini was nuts about sports: his favorite birthday party was one where he and his friends played dodgeball and … Continue reading

Annual concert, auction raise funds in memory of remarkable woman – and to provide hope to those still facing chordoma

One thing Alison Laird delighted in most during her eight-year battle with chordoma was proving her doctors wrong. A woman … Continue reading

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