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Patient Navigation

Call or email our Patient Navigators, who will provide you with highly skilled, one-on-one guidance and support at every stage of your journey with this disease. This free, confidential service is open to anyone affected by chordoma, anywhere in the world.

  1. Support
  2. Patient Navigation Service

Let us be your guide

Our Patient Navigators can help answer your questions, provide information about treatment guidelines, help you find qualified doctors, and connect you with others in the chordoma community who have been through a similar journey.

We can also assist you with finding discounted lodging and travel options, understanding financial assistance programs, and supporting appeals to insurance companies.

Here's how the Patient Navigation Service works:

Get in touch

Fill out the Request Help form below, email us, or call (888) 502-6109 to be connected to a Chordoma Foundation Patient Navigator.

Please note: Navigators are available Monday through Friday from 8:00 AM to 5:00 PM Eastern Time.

Your Navigator will contact you

A Patient Navigator will contact you within 1-2 business days. Your Navigator will talk with you to learn more about your needs, provide you with information, help answer your questions, and connect you to support and resources.

All of the information provided will be personalized to your unique situation.

We'll be here

Your Patient Navigator will be there to assist you throughout your journey with chordoma or as long as you need. You will receive regular check-ins, so your Navigator can stay up-to-date on your situation and continue providing you with support.


Request help form


Please select your language.
Knowing your location will help us provide you with more tailored resources.

Terms and policies

The Chordoma Foundation values your privacy and will not sell or share your information with any other organizations.

After you click the Submit button below, your information will be sent to a Chordoma Foundation Patient Navigator. Our Navigators are here to assist you Monday-Friday from 8AM-5PM ET and will respond to your request within 1-2 business days.

We look forward to talking with you soon!

We're here every step of the way

Learn more about how our Patient Navigators can help you on your journey with chordoma