Chordoma Foundation

Share your Uncommon Story

Telling your chordoma story in your own words can help others in our community feel more connected and prepared to take on whatever may lie ahead. We invite you to use the form below to share your insights with others, who can benefit from knowing they are not alone.

Below are a few questions to help you think about what you would like to include in your story.

  • What were some uncommon qualities that you used throughout your journey or things that you discovered about yourself along the way (perseverance, hope, love, courage)?
  • Who or what was most helpful during your diagnosis and treatment?
  • What would you say to a new patient to help them know they are not alone?
  • What did you learn during your journey that you would want others to know?

We encourage you to reflect on both the ups and downs of your journey to give others a realistic sense of what they might expect. (Stories may be lightly edited by our team for length and clarity.)


The Chordoma Foundation values your privacy and will not sell or share your information with any other organizations.

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