Chordoma Foundation

Share your Uncommon Story

Help us reach out to newly diagnosed patients, form a community of champions, and explain the importance of our Uncommon Cause by sharing the story of your chordoma journey.

Use the form below to share your insights with others who can benefit from knowing they are not alone.

Below are a few questions to help you think about what you would like to include in your story.

  • What were some uncommon qualities that you used throughout your journey or things that you discovered about yourself along the way (perseverance, hope, love, courage)?
  • Who or what was most helpful during your diagnosis and treatment?
  • What would you say to a new patient to help them know they are not alone?
  • What did you learn during your journey that you would want others to know?

We encourage you to reflect on both the ups and downs of your journey to give others a realistic sense of what they might expect. Stories should be between 400 and 500 words.


The Chordoma Foundation values your privacy and will not sell or share your information with any other organizations. 

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