2013 Research Workshop

Highlights from the Research Workshop

• • More than 100 participants from nine countries participated, a 30% increase from 2011
  • 28 presentations and 18 posters on new, unpublished data
  • Six pharmaceutical and biotech companies in attendance, reflecting a growing sense of opportunity to translate discoveries into new therapies for this orphan disease
  • Three new clinical trials are planned that will soon open to chordoma patients
  • Several drugs were found to stabilize or shrink chordoma tumors in mice
  • New chordoma cell lines, mouse models and zebrafish models are being developed, which will enable more compounds to be tested
  • The first clinical practice guidelines for chordoma were presented, accomplishing a goal identified at the first research workshop
  • Plans were discussed for developing an international patient registry to track patient outcome and quality of life over time and more accurately determine the benefits of various therapies

 We are grateful for the generosity of the following workshop sponsors: