The Wall Street Journal
What it's Like to Face a One-in-a-Million Cancer
A powerful essay describes the experience of being diagnosed with chordoma, and reasons for hope thanks to recent improvements in treatments and care.
Newsweek
Research Moves Slowly. Rare Diseases Don’t—So Patients Aren’t Waiting
The article underscores the critical role that patient communities like ours play in motivating collaboration and overcoming barriers to make faster progress toward cures.
Web MD
How a Patient-Driven Laboratory is Accelerating Progress
As part of its Health Hero series, WebMD tells the story of Chordoma Foundation Labs, and highlights the progress that’s possible when patient organizations have the ability to conduct our own research.
PR Newswire
Global Competition Launches to Drug 'Undruggable' Cancer Target
We launched a global competition offering more than $500,000 in prizes to accelerate drug discovery for TBXT — the Achilles’ heel of chordoma and a target linked to several more common cancers.
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Media Contact
We're grateful to the media partners who shine a light on progress being made by the chordoma community. If you'd like to help tell our story, reach out to our communications team.