Chordoma Foundation

Updated Doctor Directory makes it easier to find an experienced treatment team

Treating chordoma often involves highly complex procedures that require extensive training and experience to master. Because of this, one of the most important decisions patients can make is choosing doctors who routinely treat chordoma as part of a multi-disciplinary team. If you are not currently under the care of a chordoma specialist or are looking for further expert opinions to consider all your treatment options, our Doctor Directory can help.

Today, the Doctor Directory includes more than 100 doctors from around the world who have experience treating chordoma patients, including medical oncologists, radiation oncologists, skull base surgeons, and spine surgeons. With input from chordoma patients and caregivers, we recently updated this resource to make it easier to use and to ensure that it provides more helpful and up-to-date information for each doctor.

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The update process included verifying that the doctors already in the directory meet new inclusion criteria adopted by our Medical Advisory Board in 2015. We also updated contact information and added patient points of contact for doctors, as needed. At the same time, we updated the layout of the Directory to improve ease of use, particularly on mobile devices. In addition, we invited more than 80 doctors from within the U.S. and 70 new doctors from outside the U.S. who were recommended by patients or other physicians to consider joining the directory. With the help of volunteers, we are now in the process of vetting these new doctors and adding those who we verify meet the inclusion criteria.

In order to be included in the Chordoma Foundation’s Doctor Directory, a physician must meet the following strict criteria:

  • He/she must be board-certified in neurosurgery, otolaryngology, radiation oncology, orthopedic surgery, or medical oncology.
  • He/she must have completed a fellowship in a relevant subspecialty, such as skull base surgery, or have at least five years of practice experience in this subspecialty.
  • He/she must have personally treated 10 or more chordoma patients in the past five years.
  • He/she must have demonstrated a commitment to improving the treatment of chordoma by, at least once in the past five years, publishing a peer-reviewed article on chordoma, presenting research on chordoma at a national or international medical conference, or attending a Chordoma Foundation conference.

I hope the Doctor Directory will be helpful in finding the best care possible for you or your loved one. If you have any feedback or suggestions to further improve this resource, I’d love to hear you.

And, as always, if you need some extra help finding a doctor, please request help through our Patient Navigation Service or email me at shannon@chordoma.org. We’re here to help!



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