Chordoma Foundation

Living with chordoma

Newly diagnosed patients start here » 

Living with chordoma is an evolving journey from diagnosis through treatment, recovery, and survivorship. Here you will find information and resources to help you effectively navigate life with chordoma at each step of the way.

Understanding Chordoma


Get easy to understand information about what chordoma is, how it is diagnosed and treated, and how it affects those who have it. Learn more » Find out about treatment options, selecting a doctor, clinical trials, and key points for patients to consider before undergoing treatment. Learn more »

Participate in Research

Helpful Resources

Chordoma patients can help advance the search for a cure by participating in research studies and by donating tissue to the Chordoma Foundation Biobank. Learn more » We have compiled an extensive list of programs, services and materials that chordoma patients and their families have found useful. Learn more »

Get Connected

Take Action

Connect with others in the chordoma community who can provide emotional support, guidance, and a wealth of information about dealing with the disease. Learn more » Because chordoma is so rare, each and every chordoma patient and their family is critical for the success of our urgent efforts to find a cure. Learn more »

Clinical Trials

Clinical trials are a crucial step in the development of new treatments for cancer, including chordoma. This page lists all clinical trials that are known to be open to chordoma patients. Learn more »


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