Chordoma Foundation

Webinar library

The Chordoma Foundation periodically hosts free live webinars featuring researchers, clinicians, specialists, and patients to help you learn about various aspects of chordoma, living well after a chordoma diagnosis, and our work to accelerate the search for cures. We encourage you to watch these recordings of past webinars and stay tuned for upcoming opportunities to join us live.

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Improving balance, strength, and mobility after treatment

Virtual Chordoma Community Conference Series, October 2021

Balance impairment and loss of mobility can be a challenge for chordoma patients before and after treatment. Responses to our Chordoma Survivorship Survey indicate that one-third of chordoma patients and survivors experience balance impairment and 20 percent experience loss of mobility in their extremities. Watch this 60-minute webinar, to learn about improving balance, strength, and mobility after chordoma treatment. 

The webinar features presentations by Lisa Ruppert, MD, a cancer rehabilitation expert at Memorial Sloan Kettering Cancer Center, and Justin Brown, MD, a reconstructive neurosurgeon who directs the Paralysis Center at Massachusetts General Hospital. Their presentations address:

  • What causes balance, strength, and mobility issues in chordoma patients
  • How to talk with your doctors about your symptoms
  • Ways to manage and improve these issues
  • What types of doctors and specialists provide care for these challenges
  • How to find doctors and specialists in your area who can treat you

Watch webinar on YouTube »

View Dr. Brown’s slides (PDF) »

View Dr. Ruppert’s slides (PDF) »


Ask the Experts

Virtual Chordoma Community Conference Series, July 2021

Watch this 90-minute webinar featuring a panel of chordoma experts who answered questions from patients and caregivers about chordoma and chordoma treatment. This webinar is an adaptation of one of the most popular sessions at our annual Chordoma Community Conference.

Moderator

  • Ed Les, MD, clival chordoma survivor, CF Board member, Chair of CF Patient Services Committee

Panelists

  • Dr. Ziya Gokaslan, Spine Neurosurgeon, Brown Medical School and Lifespan Hospitals
  • Dr. Vinai Gondi, Radiation Oncologist, Northwestern Medicine Chicago Proton Center
  • Dr. Mrinal Gounder, Medical Oncologist, Memorial Sloan Kettering Cancer Center
  • Dr. Erin McKean, Otolaryngologist, University of Michigan Health System

Watch webinar on YouTube »


Dealing with cancer-related fatigue

Virtual Chordoma Community Conference Series, June 2021

Fatigue is one of the most common side effects of cancer treatment. In fact, responses to our Chordoma Survivorship Survey show that 59 percent of chordoma patients and survivors experienced fatigue since being treated. It is important to get help managing cancer-related fatigue as it can have a significant impact on your quality of life. Watch this 60-minute webinar featuring experts, Pouneh Fazeli, MD, MPH, and Eric Roeland, MD, to learn more about the possible causes of fatigue, ways to manage fatigue, and how the Chordoma Foundation can support you.

Watch webinar on YouTube »

View Dr. Fazeli’s slides (PDF) »

View Dr. Roeland’s slides (PDF) »


Options for comprehensive pain management

Virtual Chordoma Community Conference Series, April 2021

Pain is very common among people who have been diagnosed with any type of cancer, including chordoma. But you don’t have to accept pain as a normal part of having chordoma. Watch this 60-minute webinar featuring Maryam Jowza, MD, Staci Martin Peron, PhD, and Sasha Knowlton, MD, to learn about the type of pain you or your loved one might be experiencing, where to get help dealing with it, and how the Chordoma Foundation can support you.

Watch webinar on YouTube »

View Dr. Jowza’s slides (PDF) »

View Dr. Knowlton’s slides (PDF) »

View Dr. Martin’s slides (PDF) »


Living Well Webinar: Caring for yourself during stressful times

November 2020

This 60-minute webinar is packed with excellent tips and strategies for self-care and very helpful information from the featured speakers, Susie Rinehart and Amy Bragman, LCSW.

Watch webinar on YouTube »


Ask the Experts Webinar

August 2020

This 90-minute webinar is packed with excellent questions and very helpful answers from a panel of chordoma experts.

Watch webinar on YouTube »


Impact Update Webinar

May 2020

In this 90-minute webinar, Josh Sommer, the Chordoma Foundation’s Co-Founder and Executive Director, provided an in-depth update on recent progress, current priorities, and how the Chordoma Foundation’s mission is continuing in the midst of COVID-19. After Josh’s presentation, he took questions, along with our Director of Patient Services, Shannon Lozinsky, and then Director of Research, Joan Levy.

Watch webinar on YouTube »


Expert Answers Webinar: Making a decision about clinical trials for chordoma

June 2018

In this 60-minute webinar, medical oncologists and chordoma experts, Dr. Katherine Thornton from the Dana Farber Cancer Institute and Dr. Greg Cote from Massachusetts General Hospital, discuss when you should consider participating in a clinical trial, how to evaluate which trial is best for you, and what you can expect from the trial participation process.

Watch webinar on YouTube »

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