Chordoma Foundation

Questions to ask about treatment

Questions to ask about treatmentChordoma is a complex disease to treat. Patients often wonder what types of questions they should ask their doctors to help them make the most informed decisions about their care. We developed the list of questions to ask about treatment, below, with input from chordoma patients, caregivers, and the members of our Community Advisory Board on questions they found important to ask their doctors. You may not need to ask all the questions on these lists, and there may be questions you want to ask that are not listed.

Some helpful tips to consider:

  • Print out the questions to ask about treatment so you can take them with you to your appointments.
  • Take notes to help you remember important information discussed during your appointment.
  • Bring someone with you to your doctors’ visits to help take notes, process the information discussed, and clarify any questions or concerns.

Please request help from a Chordoma Foundation Patient Navigator if there is any way we can assist you.


Question lists

New or suspected diagnosis

  • including questions about the doctor’s experience with chordoma, diagnosis, surgery, and radiation

Recurrent chordoma

  • including questions about the doctor’s experience with recurrent chordoma, surgery, re-irradiation, and other options

Advanced or metastatic disease

  • including questions about systemic therapy and clinical trials

Palliative and supportive care

  • including questions about pain management, physical therapy, rehabilitation, and mental health counseling

Pain management

  • including questions on causes of pain and pain management options

Integrative medicine

  • including questions about complementary and alternative medicine

Insurance and disability coverage

  • including questions about treatment costs and disability benefits in the United States

Be your own best advocate

Asking questions is a great way to ensure you make the most informed decisions about your care. 

Check out some other ways to get the best care possible »

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