Chordoma Survivorship Survey Results
In June of 2020, we launched the Chordoma Survivorship Initiative, with the goal of empowering you to:
- access in-depth information, resources, and guidance specifically tailored to address the quality of life issues that most frequently affect individuals who have been affected by chordoma and
- get the best care and support needed to address these issues and live the fullest lives possible.
To learn more about the quality of life challenges that you, our community members, face following a diagnosis of chordoma, we created a survey so you could easily share this information with us. We received nearly 900 responses and we want to share the results we have so far with you. We will update this page regularly so be sure to check back!