Chordoma Foundation

Patient Navigation Service

The Chordoma Foundation Patient Navigation Service is a free and confidential resource that serves the worldwide chordoma community by providing personalized information and support to anyone affected by chordoma, at any stage of their journey.

Our Patient Navigators can help answer your questions, provide information about treatment guidelines, help you find qualified doctors, and connect you with others in the chordoma community who have been through a similar journey.

We can also assist you with finding discounted lodging and travel options, understanding financial assistance programs, and supporting appeals to insurance companies.

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Here’s how the Patient Navigation Service works:

Patient Navigation Service form icon Fill out the Request Help form below, email, or call (888) 502-6109 to be connected to a Chordoma Foundation Patient Navigator.
Patient Navigation learn icon A Patient Navigator will be in touch with you within 1-2 business days. Your Navigator will talk with you to learn more about your needs, provide you with information, help answer your questions, and connect you to support and resources. All of the information provided will be personalized to your unique situation. (Please note: Navigators are available Monday through Friday from 8:00 AM to 5:00 PM Eastern Time.)
Patient Navigation Service holding hands icon Your Patient Navigator will be there to assist you throughout your journey with chordoma or as long as you need. You will receive regular check-ins, so your Navigator can stay up-to-date on your situation and continue providing you with support.


Our Patient Navigators are native English speakers but can provide written support in other languages using Google Translate.

Request help form


Knowing your location will help us provide you with more tailored resources.

Terms and policies

The Chordoma Foundation values your privacy and will not sell or share your information with any other organizations.

After you click the Submit button below, your information will be sent to a Chordoma Foundation Patient Navigator. Our Navigators are here to assist you Monday-Friday from 8AM-5PM ET and will respond to your request within 1-2 business days.

We look forward to talking with you soon!

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