Welcome
Our efforts to accelerate cures and help patients get the best care and outcomes possible are in service of the worldwide chordoma community. The support and resources you'll find throughout our entire site are available to individuals in any country. And no matter where you're located, you can contribute to our shared mission.
In addition, because the chordoma diagnosis and treatment journey can vary by country, we offer additional local resources in some countries, including Australia, Brazil, Canada, France, Germany, Israel, Italy, Spain, the Netherlands, and the UK and also for Europe. We're grateful to our international Ambassadors, who have helped develop our local resources based on their own experiences as patients and caregivers.
You are not alone
Check out our map to see how many patients in your country are in our network, and join our map using the form below.
Number of chordoma patients in our network
Thousands of people around the globe have been affected by chordoma. Being counted helps unite patients and caregivers locally, supports clinical research in your area, and shows everyone that no one faces chordoma alone. In many countries, you’ll also find resources and patient stories tailored specifically for your region.
Fill out the form below to add yourself to our map today.
Make your mark on our map!
Our map partners
We're thankful to the following organizations who support our chordoma community map, and who are our partners in serving the worldwide chordoma community.
Our Ambassadors
Our volunteer Ambassadors help chordoma patients and families outside the U.S. connect with local resources — and each other. They also help distribute educational materials to medical centers and identify chordoma-experienced doctors in their countries, ensuring that patients have good local treatment options. We are grateful to be working with such an amazing, committed group of Ambassadors, and we encourage you to connect with an Ambassador in your country.
Ways to help
We know chordoma is a solvable problem. How fast it gets solved depends on the contributions of every one of us affected: whether by donating, hosting a fundraiser, or participating in research. There are lots of opportunities for each of us affected by chordoma to fuel research advances that will dramatically improve treatments and outcomes.
