2008 International Community Conference
April 5-6, 2008 | Bethesda, MD
Speaker Presentations |
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| The Parent’s Ultimate Challenge – When Kids/Teens Have Chordoma Julie Ries, PhD, Pediatric Clinical Psychologist at Lifebridge Health’s Brain and Spine Institute |
Navigating the Insurance Maze in the US – Where do I begin? Jennifer Libster, JD, Georgetown University Health Policy Institute |
| Advice and Care for Caregivers Brigid Guttmacher, MA, LPC |
What are my rights? – Understanding laws that protect the patient and caregiver Kerry A. Shad, JD, Partner, Smith, Anderson, Blount, Dorsett, Mitchell & Jernigan, LLP |
| Alternative Coping: Negotiating the Biological and Psychological Dimensions of Pain Melva Green, MD, MBA, MPH, Johns Hopkins Department of Psychiatry and Behavioral Sciences |
Navigating The Healthcare System Delia Chiaramonte, MD, President, Insight Medical Consultants |
Ask the Experts Panel |
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| Fran Hornicek, MD, PhD – Massachusetts General Hospital [Orthopaedic Surgery] | Michael Kelley, MD – Duke University [Hematology and Oncology] |
| Norbert Liebsch, MD, PhD – Massachusetts General Hospital [Radiation Oncology] | Frank Lieberman, MD – University of Pittsburgh[ Neuro-Oncology] |
| Dilys Parry, PhD – National Cancer Institute [Genetics, Familial Chordoma Study] | Lilia Loredo, MD – Loma Linda Medical Center [Radiation Oncology] |
| Deric Park, MD – University of Pittsburgh [Neurology & Neuro-Oncology] | Jean Paul Wolinsky, MD – Johns Hopkins University [Neurosurgery] |
Coordinating Committee |
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Volunteers |
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