Chordoma Foundation

2022 Chordoma Community Conference at NYU Langone Health

Saturday, October 1 • New York, NY

About the conference

Our Chordoma Community Conferences educate patients and caregivers about the latest advances in chordoma treatment and research and teach strategies for managing the effects of the disease.

2022 Program

The 2022 Chordoma Community Conference was held at NYU Langone Health. In the morning we held our opening session, where patients and caregivers had the opportunity to learn from local chordoma experts and ask questions about the latest treatment options and research. During the afternoon attendees could attend one of two breakout sessions focused on living with chordoma, followed by the latest advances in research, and lived experiences.

The conference focused on an array of topics including:

  • treatment including surgery and radiation therapy
  • immunotherapy and targeted drug therapy
  • clinical trials
  • emotional and peer support
  • living with the consequences of chordoma
  • the Foundation’s role in driving chordoma research

View the agenda »

Speaker presentations

Read speaker bios »

Welcome
Josh Sommer (Chordoma Foundation)
John Golfinos, MD

State of the art treatment
Chandra Sen, MD
View Slides
Nicola Fabbri, MD
View Slides
Daniel Sciubba, MD (Northwell Heatlh)
Douglas Kondziolka, MD
View Slides
Josh Yamada, MD (MSKCC)
View Slides
Gregory Cote, MD, PhD (MGH)
View Slides

Ask the experts panel
Moderator: Ilya Laufer, MD

Panelists:
Nicola Fabbri, MD
Shannon MacDonald, MD (MGH)
Chandra Sen, MD
Josh Yamada, MD (MSKCC)
Gregory Cote, MD, PhD (MGH)

 

Decide Happy
Susan Hall, chordoma survivor, author, and Chordoma Foundation Peer Guide

 

Living with chordoma: Skull base and upper cervical spine
Cinthi Pillai, MD neuro-ophthalmology
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Nidhi Agrawal, MD neuro-endocrinology
View Slides

Living with chordoma: Lower cervical, thoracic, lumbar and sacral
Lisa Ruppert, MD (MSKCC) physiatry
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Benjamin Brucker, MD urology

Moving towards personalized care
Personalized medicine and chordoma
Dan Freed, PhD
View slides
Making testing work for you
Matija Snuderl, MD

Advancing the search for a cure
Josh Sommer (Chordoma Foundation)

Closing
Sharon Berlan, chordoma survivor and Chordoma Foundation Peer Guide
View slides
Chandra Sen, MD

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