Chordoma Foundation

2020 International Chordoma Community Conference

Friday, July 17–Saturday, July 18, 2020  •  Boston, MA
Boston Marriott Cambridge Hotel

Chordoma Community Conference collage

Notice regarding coronavirus/COVID-19

The Chordoma Foundation is closely monitoring the continuing developments pertaining to the novel coronavirus/COVID-19. We want to assure anyone planning to attend our upcoming International Research Workshop (ICRW) or International Chordoma Community Conference (ICCC) in Boston that your health and safety are our top priorities. We are tracking all travel restrictions issued by the U.S. government, as well as information and guidance from the U.S. Centers for Disease Control and Prevention (CDC) and the World Health Organization (WHO).

At this time, there is no plan to cancel or postpone either the ICRW or the ICCC. However, due to the international nature of these conferences, we ask you to please be aware of the possibility of cancellation or postponement as the situation around the world evolves and new information becomes available.

If cancellation or postponement becomes necessary, conference registration fees will be refunded in full, but we would not be able to reimburse you for the cost of travel you have already scheduled or purchased. We encourage you to consider refundable or changeable options for plane tickets, hotel rooms, etc. when making travel arrangements. The room block at the conference hotel, the Boston Marriott Cambridge Hotel, has a cancellation policy of 72 hours before check-in.

We will provide further updates in the coming weeks. Please don’t hesitate to contact us with any questions at

About the conference

The International Chordoma Community Conferences (ICCCs) include opportunities for chordoma patients and caregivers to learn, connect, and take action. We host ICCCs once every other year in the days following our International Chordoma Research Workshops (ICRWs), which bring together multidisciplinary researchers and doctors to advance the work being done to cure chordoma.

ICCCs include sessions designed to help participants learn about chordoma treatment advances and gain practical skills to help manage the challenges brought on by chordoma. The conferences provide unique opportunities for patients and caregivers to learn directly from leading chordoma doctors and researchers, including members of the Foundation’s Medical and Scientific Advisory Boards. They even include a time to ask questions about the latest treatment options and research.

The conferences are also a time for patients and their loved ones to connect with peers who share similar experiences and take action to achieve our shared vision for a better future for those affected by chordoma. Over the past 12 years, these conferences have brought together hundreds of people from around the world to face the unique challenges of chordoma together. Our hope is that participants come away more informed, connected with a supportive community, and empowered to take on life with chordoma.

2020 program

Join us at the Boston Marriott Cambridge Hotel beginning the afternoon of Friday, July 17, 2020, for our opening sessions, where patients and caregivers will have the opportunity to break into small groups and meet others whose experiences with chordoma are similar. The opening sessions will be followed by a reception and dinner for ICCC and ICRW participants, during which Uncommon Awards will be presented to members of the patient and the medical community.

Saturday, July 18, 2020, will be a full day of programming at the Marriott. This year’s conference will focus on an array of topics including:

  • the Foundation’s role in driving chordoma research 
  • clinical trials
  • survivorship planning 
  • pain management
  • emotional and peer support 
  • community fundraising

Step 1: Register

Early-bird registration is available now until May 15. Please note the price of registration will increase by $25 after May 15.

Registration Fees

Until May 15

After May 15

Conference only
Access to opening conference sessions on Friday, July 17, 2020, and all sessions on Saturday, July 18, 2020. It also includes continental breakfast, lunch, and beverage service throughout the day on Saturday.



Uncommon Awards Dinner only
Access to reception and dinner on Friday, July 17, 2020.



Conference + Dinner
Access to opening conference sessions, reception, and dinner on Friday, July 17, 2020, and all sessions on Saturday, July 18, 2020. It also includes continental breakfast, lunch, and beverage service throughout the day on Saturday.



Register now »


Step 2: Book your hotel

All sessions and programming will take place at the newly renovated Boston Marriott Cambridge Hotel. For your convenience, we have reserved a room block at the Marriott at a discounted rate of $259 per night (tax not included).

To get the group rate, book online or call (888) 236-2427 and mention the Chordoma Foundation. Reservations must be made no later than Tuesday, June 16, 2020. Rooms are available on a first-come, first-served basis, so we strongly encourage you to book as soon as possible. You can cancel with the Marriott up to 48 hours before the scheduled arrival.

See hotel and travel information »


Step 3: Stay tuned for schedule updates

Once you have registered for the conference, you will begin receiving emails as speakers and sessions are announced. Throughout the conference, you can expect to hear from Chordoma Foundation staff, our Medical and Scientific Advisory Board members, fellow patients and caregivers, and a variety of medical professionals from disciplines such as spine neurosurgery, skull base neurosurgery, radiation oncology, medical oncology, palliative care, integrative medicine, and survivorship care.

View draft schedule »



Please email us at if you have any questions about the conference.


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