Chordoma Foundation

2020 International Chordoma Community Conference

Friday, July 17–Saturday, July 18, 2020  •  Boston, MA
Boston Marriott Cambridge Hotel

Chordoma Community Conference collage

About the conference

The International Chordoma Community Conferences (ICCCS) include opportunities for chordoma patients and caregivers to learn, connect, and take action. We host ICCCs once every other year in the days following our International Chordoma Research Workshops (ICRWs), which bring together multidisciplinary researchers and doctors to advance the work being done to cure chordoma.

ICCCs include sessions designed to help participants learn about chordoma treatment advances and gain practical skills to help manage the challenges brought on by chordoma. The conferences provide unique opportunities for patients and caregivers to learn directly from leading chordoma doctors and researchers, including members of the Foundation’s Medical and Scientific Advisory Boards. They even include a time to ask questions about the latest treatment options and research.

The conferences are also a time for patients and their loved ones to connect with peers who share similar experiences and take action to achieve our shared vision for a better future for those affected by chordoma. Over the past 12 years, these conferences have brought together hundreds of people from around the world to face the unique challenges of chordoma together. Our hope is that participants come away more informed, connected with a supportive community, and empowered to take on life with chordoma.

2020 program

Join us at the Boston Marriott Cambridge Hotel beginning the afternoon of Friday, July 17, 2020, for our opening sessions, where patients and caregivers will have the opportunity to break into small groups and meet others whose experiences with chordoma are similar. The opening sessions will be followed by a reception and dinner for ICCC and ICRW participants, during which Uncommon Awards will be presented to members of the patient and the medical community.

Saturday, July 18, 2020, will be a full day of programming at the Marriott. This year’s conference will focus on an array of topics including:

  • the Foundation’s role in driving chordoma research 
  • clinical trials
  • survivorship planning 
  • pain management
  • emotional and peer support 
  • community fundraising

Registration will open in January 2019!

Conference hotel

All sessions and programming will take place at the newly renovated Boston Marriott Cambridge Hotel. For your convenience, we have reserved a room block at the Marriott at a discounted rate of $259 per night (tax not included).

To get the group rate, book online or call (888) 236-2427 and mention the Chordoma Foundation. Reservations must be made no later than Tuesday, June 16, 2020. Rooms are available on a first-come, first-served basis, so we strongly encourage you to book as soon as possible. You can cancel with the Marriott up to 48 hours before your scheduled arrival.



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