“I know from being diagnosed with chordoma that hearing you have chordoma is one of the hardest things to deal with. It raises numerous questions that beg answers. And it is so valuable to be able to speak with someone who has answers, and can provide reliable information and be a guide through your journey with this disease.”
– Josh Sommer, Executive Director, Chordoma Foundation
Unless you have a medical degree – and possibly even then – making sense of chordoma and how to deal with it can be a real challenge.
Every day, we speak with patients, family members, and friends looking for answers to important questions. And over the years, we’ve gotten a good sense of what the most commonly raised issues are. From finding the right care team to understanding treatment options to getting emotional support, there are a number of practical challenges that most everyone affected by chordoma will face at one time or another.
Now, you can get straight answers to those questions directly from leading chordoma doctors and experts through our new Expert Answers video series.
We are excited to share the first five videos in this series today, with more to follow in the months ahead.
Whether chordoma is new to you, or something you or a loved one has been dealing with for a while, we hope that this series will provide greater clarity about this complex disease and help you make more informed decisions.
Questions covered in the initial series include:
What are the most important things a chordoma patient should know?
What should chordoma patients look for in a treatment team?
How can the diagnosis of chordoma be confirmed?
What types of radiation are used to treat chordoma, and how do they differ?
Moving forward, you can expect to see additional videos covering topics that range from tumor profiling to drug therapies to managing recurrence, and more.
We hope you find these resources useful. Keep the questions coming!
For more information, request help from our Patient Navigation team.
The Expert Answers video series is for informational and educational purposes only. These videos are not a substitute for professional medical advice, diagnosis, or treatment. The Chordoma Foundation strongly recommends that care and treatment decisions be made in consultation with a physician or other qualified health care professionals who are familiar with your specific health situation. Always seek the advice of your physician for any questions you may have regarding your medical care. Never disregard professional medical advice or delay in seeking it because of something you hear in a video or read on this website.