Reflections on the first Pediatric and Young Adult Chordoma Clinic
Last month, on April 16-18, the first-ever chordoma-specific clinic for pediatric and young adult patients was held at the National … Continue reading
Latest Updates
The hope I have is because of you
As I write today, I am twelve years distant from my initial diagnosis of chordoma. At the time, the news … Continue reading
You’re not alone. We’re on your team. Meet the members of #TeamChordoma
“I know that the race will be jovial and meaningful because it will be a connected experience for all of … Continue reading
Afatinib trial now open at second site
Launched last summer, a Phase 2 clinical trial testing the effectiveness of the targeted therapy afatinib is continuing to enroll … Continue reading
New educational resources developed to help make sense of treatment options for chordoma
Making sense of chordoma and how to manage it can be challenging and overwhelming. It raises numerous questions whose answers … Continue reading
National Cancer Institute to host a pediatric and young adult chordoma clinic on April 16-18
We are thrilled to share an upcoming opportunity for pediatric and young adult patients – up to age 39 – … Continue reading
New paper confirms that brachyury is the Achilles’ heel of chordoma, and reveals a new way to attack it
I’m excited to share the findings of a new paper published earlier this week in the journal Nature Medicine that … Continue reading
Grants awarded to two Canadian researchers address key research priorities in chordoma
At the end of 2018, the Chordoma Foundation and the Canadian Cancer Society (CCS) together awarded two new grants totaling … Continue reading
New educational resource: Expert Recommendations for the Treatment of Recurrent Chordoma
If you have been treated for chordoma in the past, receiving the news that your tumor is growing again can … Continue reading
New Community Advisory Board Chair Chris Jones brings passion and purpose to CAB’s mission
As you may have read in our October/November newsletter, the Chordoma Foundation recently welcomed longtime advocate and devoted dad Chris … Continue reading