Before Chuck Mainey was diagnosed with chordoma in 1999, he and his family — like many affected — had never heard of it. Back then, treatments were even more limited, and there wasn’t a resource like the Chordoma Foundation available to help. Over the next 15 years, Chuck battled the disease while continuing to pursue his love of basketball. Though chordoma science advanced significantly during this time, Chuck’s tumor ultimately outpaced research progress and he lost his fight in 2014, surrounded by those he loved. As part of Chuck’s legacy, the Maineys have dedicated themselves to helping blaze a trail for better treatments and care for everyone affected, recognizing the potential for new therapies in their lifetime. This is their story.