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Gifts of hope: How to dedicate your birthday to progress against chordoma

Virtual birthday fundraisers make it easy for your friends and family to send you good wishes while helping us advance chordoma research and support patients.

Taking action

Chordoma patients and survivors often accompany their birthdays with a virtual fundraiser for the Chordoma Foundation, which makes it easy for your friends and family to send you good wishes while helping us advance chordoma research and support patients. We invite you to join this committed group of birthday fundraisers — it’s a piece of cake.

How it works

Choose one of these three easy options:

  1. Personal page on our website. Click here, then select “Become a fundraiser” and fill out the short form that follows.
  2. Facebook. Click here to begin a personalized fundraiser, then click the “Create” button.
  3. Instagram. Create a post and tap “Add Fundraiser” in the same screen as where the caption is added.

Tips for a successful fundraiser

  • Make your page personal. Adding a photo of you and telling your chordoma story is a compelling way to maximize support.
  • Be the first to make a donation. There’s no better way to demonstrate to others that you’re fundraising for a cause you believe in.
  • Email your fundraising page to your network. Sending the link directly via email (or text message) is THE most effective way to collect donations. (Keep in mind: Your loved ones will see your birthday fundraiser as a welcome opportunity to honor you and show their support!) Include the link to your page, a personal message about why you’re asking for support, and a specific request to donate.
  • Share your link on social media. Provide updates on your goal, thank individuals who have donated so far, and remind people why their donation is meaningful to you. Consider using as many platforms as possible: Facebook, LinkedIn, Twitter, and Instagram.
  • Set an ambitious goal. Challenge your supporters to help you meet a specific dollar amount. If you meet it quickly, celebrate with a post to thank everyone — then increase the goal!
  • Show appreciation. Thank your donors for their meaningful show of support.

“People are in my corner”: Why your peers love hosting birthday fundraisers

Here’s what three chordoma patients had to say about their recent fundraising success:

“A birthday fundraiser is a great way to support the Foundation. It enabled people who followed me through my chordoma journey to connect with me and show support, even from miles away. It reinforced how many people are in my corner.”

Todd Vallie

“This is the second year I’ve done a virtual fundraiser. Chordoma is close to me: I was diagnosed in 2013 and I’m still fighting it, with a second recurrence. The research the Foundation has done to find possible cures is fantastic. Since I live in a small town, I knew a virtual fundraiser was the best way to reach my friends and high school classmates.”

Wanda Fuller

“I support the Foundation with personal donations, but wanted to help more. I’m not a runner, so I couldn’t be sponsored in a race. I’m not good at setting up in-person events, so that was out. But I do have generous friends! And it’s so easy to have a birthday fundraiser. I sent the fundraiser to all my Facebook friends, and many donated.”

Donna DiMuro

Virtual fundraising: Beyond birthdays

Virtual fundraisers can be set up 365 days a year, for any occasion or milestone. Our creative community members have created fundraising pages for athletic goals, in honor or memory of a loved one, to celebrate wedding anniversaries, to mark the completion of their chordoma treatment, and more. If you have questions about virtual fundraising (or setting up an in-person event!), or want to discuss your ideas, reach out to the development team for a one-on-one conversation.

We’re incredibly grateful to our growing community of fundraisers, and we look forward to partnering with you in our shared quest to ​​find better treatments for chordoma and help patients facing this disease today.

Ways to help

We know chordoma is a solvable problem. How fast it gets solved depends on the contributions of every one of us affected: whether by donating, hosting a fundraiser, or participating in research. There are lots of opportunities for each of us affected by chordoma to fuel research advances that will dramatically improve treatments and outcomes.

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