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Community fundraisers turn passion into action

We would not be where we are without you.

Taking action

As a patient-driven organization, our success depends on the initiative of supporters like you. Over the years, our amazing community members have held nearly one hundred events benefiting the Foundation. By turning their passion into action and involving their friends, families and community members, these dedicated champions have raised the funds needed to accelerate new treatments and provide vital support services to chordoma patients and families.

This year alone, Chordoma Champions have hosted nine outstanding community fundraising events that have raised a combined total of more than $165,000. And there are five more community fundraisers planned before the end of the year that you can participate in or support. Join our champions as they bike, golf, bowl, cook, and pub crawl their way to better treatments and cures for everyone affected by chordoma.

Thank you to the incredible individuals who have volunteered their time and resources to make these events possible, and to all our fundraisers for everything you do for the Foundation and the chordoma community. We would not be where we are without you.

If you are interested in fundraising on behalf of the Foundation, please contact the development team. We would love to talk with you and help you create your own community event.

Hear from our 2018 community fundraisers

Riccomini Dodgeball Tournament
West Sayville, NY | February

“Holding the Dodgeball Tournament in my son Cameron’s memory always means a great deal to me. It is great that our small close-knit community remembers and raises money for the Chordoma Foundation in his memory so that better treatments and ultimately a cure can be found.”

Colleen Riccomini

Dawson’s Circle of Hope 5K
Geneva, FL | April

“I wanted to send the proceeds to The Chordoma Foundation because that is the cancer that took Dawson away from me, and also because I have been keeping up on the research and clinical trials and feel that the Foundation is very close to finding viable treatment options. There was nothing available for Dawson but by sending his tissue samples to the Biobank and providing research funds, progress has been made with the help of my foundation as well as others that have lost their children to chordoma. It is one way that I can fight back and help others in Dawson’s name.”

– Susan Creager

Spirit Night: Jess’s Battle Against Chordoma
West Mifflin, PA | April

“I would say the thing that meant the most was having all the love and support of my family and friends during the event. My dad is my number one supporter and having him here from Virginia meant the world to me.”

Jessica McGeever

Swing For a Cure in Honor of Hank Ciocca
New York, NY | April

“‘Swing for a Cure was a very positive way for our family and friends to commemorate the tenth anniversary of Hank’s passing. We feel strongly that the event underscored his legacy in a most appropriate manner: supporting an important cause while at the same time gathering together to enjoy a fun afternoon that as a bonus included his favorite sport, golf! We learned that Hank touched many lives and people were extremely generous in supporting a cause important to all of us. We would 100% do it again.”

Ciocca Family

Operation Support & Recover Ride
Queensland, AU | May

“I definitely would hold fundraising events again. I think the local support that was provided proves people are willing to support good causes.”

Rik Karena

Brooklyn Half Marathon

London, UK | May

“This was our 5th year, and it was amazing to have Team Chordoma and our fundraising effort grow once again. What has been so meaningful is the increasing involvement of the broader Chordoma Foundation community in making this event such a success. I look forward to engaging even more community volunteers and runners next year. This event is bigger than any one person, and so much more can be achieved by including the broader Chordoma Foundation community.”

– Steve Mandel

Dress Down Day
Clifton, NJ | June

“Holding the Dress Down Day fundraiser within the school district where I work gives me an opportunity to send donations in addition to our family’s personal contributions to help improve chordoma research and care. Individuals are happy to support a worthy cause, especially if it is easy to do.”

Lynette Nelson

Swing Fore the Cure
Kansas City, MO | June

Chordoma survivors Jeff Schilling and Maggie Bates organized the 6th Annual Swing Fore the Cure Golf Tournament at Deer Creek Golf Course in Overland Park, Kansas. 150 golfers participated in the event and raised more than $30,000 for the Chordoma Foundation and the Leukemia & Lymphoma Society.

Hike to Find a Cure for Chordoma
Pownal, ME | July

“It was a chance for me to get involved. The Chordoma Foundation does so much to advance research and help patients and their families, and I am proud to be a part of this community and everything it stands for and has accomplished for those in need.”

– Seth Butler

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