Chordoma Foundation

Chordoma Connections is here!

Chordoma Connections logo

Today is the day! We’re thrilled to announce that Chordoma Connections, a private, online community solely for chordoma patients and their loved ones, is now live.

Join Chordoma Connections

Becoming a member is easy!

  1. Go to and click Join.
  2. Complete and submit the short registration form to create your account. The community admins will review your information and, once your account has been approved, you will get a confirmation email that you can get started.
  3. Log in to Chordoma Connections, and take a tour of the community.
  4. Be sure to write a post introducing yourself so other members can welcome you!
  5. Join in the discussion.

Once you’ve joined, there are many ways to get involved, share your experiences, and hear about how others have dealt with similar situations. Here are a few examples of what you can do inside the community:

online community - share an update
online community launch - learn about research advances online community launch - connect with others around the world


No matter where you are on your journey with chordoma, your role in that journey, or your location in the world, there is a place for you in Chordoma Connections. There are opportunities to learn, find others like you, exchange information, get support, and give support to others.

We look forward to connecting with you in the new community!

Pin It on Pinterest

Share This
Comodo SSL