In 2021, we hosted a Virtual Chordoma Community Conference (CCC) Series of five webinars about some of the most common quality of life challenges you face.
Balance impairment and loss of mobility can be a challenge for chordoma patients before and after treatment. Responses to our Chordoma Survivorship Survey indicate that one-third of chordoma patients and survivors experience balance impairment and 20 percent experience loss of mobility in their extremities. Watch this 60-minute webinar, to learn about improving balance, strength, and mobility after chordoma treatment.
The webinar features presentations by Lisa Ruppert, MD, a cancer rehabilitation expert at Memorial Sloan Kettering Cancer Center, and Justin Brown, MD, a reconstructive neurosurgeon who directs the Paralysis Center at Massachusetts General Hospital. Their presentations address:
- What causes balance, strength, and mobility issues in chordoma patients
- How to talk with your doctors about your symptoms
- Ways to manage and improve these issues
- What types of doctors and specialists provide care for these challenges
- How to find doctors and specialists in your area who can treat you
Following the presentations, our Director of Patient Services, Shannon Lozinsky, MSW, led a question and answer session with the experts and discussed how the Chordoma Foundation can support you.
Information provided by the panelists is not patient-specific and is not medical advice. Please follow up with your doctor to discuss the information you learn from this webinar.