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Webinar: Advocating for yourself: Lessons from a chordoma survivor and Patient Advocate

11/5/2025
13:00 EST
Patients and families
Virtual United States

Registration

In this webinar, you'll hear powerful, firsthand insights from Esther Goedvolk (the Netherlands), a chordoma survivor who has navigated the challenges of diagnosis and treatment with courage and resilience, and Nancy Forte, the devoted spouse of a chordoma patient and an active Patient Advocate. Together, they’ll share their experiences, lessons learned, and practical advice on how to effectively speak up for yourself—or your loved one—throughout the chordoma journey.

Whether you're newly diagnosed, a long-term survivor, or a caregiver, this conversation will empower you to take charge of your care, build stronger relationships with your medical team, and find your voice in the face of uncertainty.

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