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Rare Disease Day

There are many ways to power our shared mission on Rare Disease Day!

All Day

Join us in recognizing Rare Disease Day (February 29) — an opportunity to widen the circle of people working together to improve treatment, care, and experiences for chordoma patients.

Here's what we can do to invite more people to join this cause:

  1. Share your story. This is a powerful way to help people understand what it's like to be — or care for — a chordoma patient.
  2. Tell our friends and family about the Chordoma Foundation. Let them know about the work being done to advance research, improve treatments, and support patients and families.
  3. Be counted on our map. Place a pin representing your journey to help us show chordoma's impact globally.
  4. Make a donation. Support the Chordoma Foundation's services for patients and caregivers, and accelerate our research toward better treatments and outcomes. (You can even dedicate your gift to a patient, caregiver, or chordoma provider.)
  5. Create a fundraising page. Your loved ones will welcome the chance to help bring about new chordoma therapies, and Rare Disease Day is an ideal opportunity for us to invite them to support our shared mission.

Reach out to us with questions or if you'd like to discuss an idea.

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