The International Chordoma Community Conference (ICCC) is your chance to learn from leading experts, get practical guidance for day-to-day challenges, and feel the power of community. You’ll hear the latest on research and treatment directly from clinicians and scientists, then turn insights into action with sessions focused on navigation, symptom management, and living well.
Just as important, you’ll meet others who truly understand what it's like to live with chordoma: other patients, survivors, and caregivers from around the world.
Come for the knowledge; leave with a clearer path forward and a network by your side.
The ICCC kicks off the evening of Friday, September 18, 2026, with a meet-and-greet and dinner with physicians and researchers; it concludes on Sunday morning, September 20.
Registration & agenda
Registration will open in the coming months, and a detailed agenda is in development. Sign up for our newsletter to be notified as soon as registration opens and new details are posted.
Questions?
Contact us at events@chordoma.org.
We look forward to seeing you there!
Travel and lodging
September is one of the best times to visit Boston, with comfortable weather and the first signs of fall. The hotel and venue are situated in a lively, walkable neighborhood.
Sponsorship Opportunities
Sponsorship is a great way to connect with researchers, clinicians, and patients in the chordoma community while showcasing your organization’s commitment to progress against this disease. Request a sponsorship prospectus from ashley@chordoma.org.