The International Chordoma Community Conference (ICCC) brings together patients, caregivers, and loved ones from around the world for a weekend focused on research, care, survivorship, and connection.
We’ll kick things off on Friday with relaxed sessions where you can meet new friends and re-connect with old ones, then join the doctors and researchers finishing up the International Chordoma Research Workshop for a reception and our Uncommon Awards dinner.
Saturday will be a day of learning and conversation. We’ll talk about how chordoma research works, share updates to international care guidelines, and explore what survivorship means as needs change over time. Throughout the day, there will be opportunities to share your experiences and perspectives, because the input of patients and caregivers is vital to shaping research, improving care, and strengthening support.
Sunday morning will focus on connection and community, with time for peer support, open conversation, and guided activities. There will be space to reflect, build relationships, give to others facing chordoma, and head home feeling grounded and inspired.
We hope you’ll join us for a weekend of helpful insights, hopeful updates, and meaningful connection!
Agenda
A detailed agenda is in development. Sign up for our newsletter to be notified as new details are posted.
Questions?
Contact us at events@chordoma.org.
Registration
Registration for the 2026 ICCC is now open! Join patients, caregivers, and loved ones from around the world for a meaningful weekend focused on research updates, care, survivorship, and connection. Come learn, share your experiences, and build lasting relationships within the chordoma community.
Travel and lodging
September is one of the best times to visit Boston, with comfortable weather and the first signs of fall. The hotel and venue are situated in a lively, walkable neighborhood.
Thank you to our sponsors!
We're deeply grateful to our sponsors for their generous support of the 2026 International Chordoma Community Conference. Our sponsors make it possible to create meaningful connections for those affected by chordoma.
Champion sponsors
Advocate sponsor
Sponsorship Opportunities
Sponsorship is a great way to connect with researchers, clinicians, and patients in the chordoma community while showcasing your organization’s commitment to progress against this disease.
Explore available sponsorship levels and benefits in our 2026 Sponsorship Prospectus.
For questions or more information, email Ashley White at ashley@chordoma.org.