Our Chordoma Community Day series brings connection, learning, empowerment and hope right to your doorstep.
Chordoma Community Day attendees will learn practical tools and strategies for navigating life with chordoma, hear inspiring stories from our community, and have the life-changing opportunity to make lasting friendships with others affected by chordoma who live in your area. You'll also learn about the latest in chordoma treatment and research.
We look forward to seeing you, expanding and deepening our community ties, and creating a space where everyone affected by chordoma feels supported and included.
The registration fee for this event is $50, which includes refreshments, snacks, breakfast, and lunch. If you need assistance with the cost of registration, please contact us at events@chordoma.org.
Agenda
We are in the process of finalizing the agenda (draft here). Please check back to this page for updates and sign up for our newsletter to stay informed.
Session topics will include:
- Living with chordoma
- Connecting with others
- Chordoma research and treatment updates
- How to get involved
Confirmed speakers:
- Ann Kletz, chordoma survivor, will share her powerful lived experience and patient perspective.
- Dr. Matei Banu, chordoma clinician-scientist, will share the current research efforts taking place at Stanford Medicine.
- Dr. Atman Desai, neurosurgeon, will share an overview and insights into chordoma spine surgery at Stanford Medicine.
- Dr. Susan Hiniker, radiation oncologist, will share insights into the new proton therapy capabilities at Stanford Medicine.
- Lydia Scott Adams, CPT/CMT, will provide an overview of massage therapy and its benefits for chordoma patients.
- Josh Sommer, chordoma survivor and Executive Director, will share the latest updates at the Chordoma Foundation.
- Shannon Lozinsky, Director of Patient Services, will share an overview of resources to address side effects and improve quality of life.
- Dani Pike, chordoma survivor and CF Development and Engagement Officer, will share her story and how to make an impact and go forward with hope.
There will be a dedicated Meet & Connect session to share, ask questions, and get to know others in the chordoma community.
What to know
Location and time
625 El Camino Real, Palo Alto, CA 94301
Saturday, July 19, 2025
9:00am - 4:30pm EST
Parking
Complimentary self-parking is available for guests arriving on Saturday, July 19. Overnight self-parking is $20 per day.
Lodging
Sheraton Palo Alto Hotel has kindly arranged a discounted rate of $169 per night (plus applicable taxes and fees). To book, visit the link here or contact the hotel at +1 650-328-2800 and reference the Chordoma Community Day by June 18, 2025.