Our Chordoma Community Day series brings connection, learning, empowerment and hope right to your doorstep.
Chordoma Community Day attendees will learn practical tools and strategies for navigating life with chordoma, hear inspiring stories from our community, and have the life-changing opportunity to make lasting friendships with others affected by chordoma who live in your area. You'll also learn about the latest in chordoma treatment and research.
We're looking forward to seeing you, expanding and deepening our community ties, and creating a space where everyone affected by chordoma feels supported and included.
Agenda
Find the final agenda here.
Session topics will include:
- Living with chordoma
- Connecting with others
- Chordoma research and treatment updates
- How to get involved
There will be a dedicated Meet & Connect session to share, ask questions, and get to know others in the chordoma community.
Confirmed speakers:
- Dr. Moain Abu Dabrh, Kaitlyn Dietz, and Dr. Irina Todorov from Mayo Clinic Jacksonville will lead quality of life sessions focused on resilience, nutrition, and integrative health approaches.
- Denise Hawks, chordoma survivor, will offer her powerful lived experience and patient perspective.
- Dr. Adam Holtzman from Mayo Clinic Jacksonville will share the latest advancements in radiation therapy and what they mean for chordoma patients.
- Andrea Locke and Dani Pike will provide insights on chordoma survivorship and ways to make an impact.
- Joining virtually, Josh Sommer and the CF Labs team will share the latest research updates.
What to know
Location and time
1000 Tournament Players Club Blvd, Ponte Vedra Beach, FL 32082
Saturday, April 26, 2025
9:00am - 5:00pm EST
Parking
Complimentary self-parking is available for guests arriving on Saturday, April 26. Overnight self-parking is $22 per day, and valet parking is $35 per day.
Lodging
Attendees are welcome to book accommodations at the Sawgrass Marriott, our host hotel and the location of the event.
For additional accommodations, the Hilton Garden Inn Jacksonville Ponte Vedra Sawgrass is located just 0.2 miles away.