Our 2024 Chordoma Community Day series is bringing connection, learning, empowerment, and hope right to your doorstep — starting in Houston.
(Later this year, we're also stopping in Chicago and San Diego — sign up for our newsletter for info on those events!)
Chordoma Community Day attendees will learn practical tools and strategies for navigating life with chordoma, hear inspiring stories from our community, and have the life-changing opportunity to form lasting friendships with others affected by chordoma who live in your region.
Attendees in Houston will also hear about new updates in chordoma research from Dr. Shaan Raza, neurosurgeon at The University of Texas MD Anderson Cancer Center. You'll also learn more about Chordoma Foundation Labs.
We're excited to see you, expand and deepen our community bonds, and create a space where everyone affected by chordoma feels supported and included.
Location, parking, and lodging
Location
Houston Community College District Office
3100 Main Street
Houston, TX 77002
Check in at the Conference Services office, located on the second floor in Suite 2D00.
Parking
There is parking available on 7th and 8th floor in the parking garage located at 3200 Main. A sky bridge connects the parking garage and 3100 Main, which leads directly to Conference Services on the 2nd Floor, Suite 2D00.
Hotel options near Houston Community College
Houston Community College is conveniently located downtown and there are many hotels to choose from. Here are a few that are located nearby:
La Maison in Midtown (0.5 mile)
Holiday Inn Houston Downtown (1 mile)
The Whitehall (1 mile)
Agenda
The agenda is a work in progress so please check back periodically and sign up for our newsletter to stay updated.
- 9:00 am Registration opens
- 9:15 am Social time - Coffee & baked goods
- 10:00 am Welcome (Kimberley de Haseth, Chordoma Foundation)
- 10:05 am Lived experiences (Bill Monahan - chordoma survivor and Alyssa Lee - chordoma patient)
- 10:35 am Introduction to chordoma survivorship (Andrea Locke, Chordoma Foundation)
- 10:45 am Self-care including neurogenic bowel and bladder management for chordoma survivors (Jisha Thomas, APRN, MD Anderson Cancer Center)
- 11:30 am The power of journaling (Megan Whetstone)
- 12:15 pm Lunch
- 1:45 pm Nutrition and physical activity for chordoma survivors: How to apply the current guidelines (Amar Patel, MD, MD Anderson Cancer Center)
- 2:30 pm The Story of CF Labs (Josh Sommer, Chordoma Foundation)
- 3:00 pm A behind the scenes look: Chordoma Research at MD Anderson (Dr. Shaan Raza, The University of Texas MD Anderson Cancer Center)
- 3:45 pm Make an impact and go forward with hope (Dani Pike, Chordoma Foundation)
- 4:00 pm closing
To help us keep costs down and offer more Community Days, there will be no virtual option or recording for this meeting.
Registration
The registration fee for this event is $50, which includes coffee, baked goods, and lunch. If you need assistance with the cost of registration, please contact us at events@chordoma.org.
Questions?
Contact us at events@chordoma.org.