2016 Chordoma Community Conference at Mayo Clinic
As part of the Chordoma Foundation’s ongoing efforts to bring the latest updates in chordoma science and care to patients and caregivers in their own communities, the 2016 Chordoma Community Conference was held in partnership with Mayo Clinic at their Rochester campus on October 15, 2016.
More than 50 patients, caregivers, and family members attended the day-long conference from cities around the Midwest – with some journeying from the eastern and western US coasts, Canada, and as far as France. We were inspired to witness many new friendships form and the earnestness with which those who had attended previous conferences welcomed newcomers.
Chordoma experts representing a wide range of medical specialties from the Mayo Clinic, Dr. Tom DeLaney of Massachusetts General Hospital, and patient advocate Janis Ollson were among those who shared their knowledge about best care practices, latest advances in treatment, and ways to maintain quality of life.