Chordoma Foundation

Meet our Peer Guides

Our team of Peer Guides is comprised of members of the chordoma community who volunteer with the Chordoma Foundation to be matched with fellow patients or caregivers who need emotional support along their journey with chordoma. Peer Guides provide a listening ear, serve as a sounding board, and suggest helpful information and resources, if requested.

Sharon Berlan, chordoma Peer Guide

Sharon Berlan

Peer Guide since: 2011
Connection: chordoma survivor
Tumor location: cervical and clival

Talk with me about:

  • Support while making treatment decisions
  • What to expect during treatment
  • Dealing with treatment side effects and quality of life challenges
Sue Brenneman, chordoma Peer Guide

Sue Horst Brenneman

Peer Guide since: 2020
Connection: chordoma co-survivor
Tumor location: clival

Talk with me about:

  • Support while making treatment decisions
  • What to expect during treatment
  • Dealing with treatment side effects and quality of life challenges
  • Relationships with family and friends
  • Grief and loss

Sue also serves as a moderator of Chordoma Connections, the Foundation’s private online community and is on our Community Advisory Board.

Alex Casanave, chordoma Peer Guide

Alex Casanave

Peer Guide since: 2020
Connection: chordoma survivor
Tumor location: clival

Talk with me about:

  • Support while making treatment decisions
  • What to expect during treatment
  • Working or going to school during or after treatment
  • Navigating chordoma as a young adult
Donna DiMuro, chordoma Peer Guide

Donna DiMuro

Peer Guide since: 2020
Connection: chordoma survivor
Tumor location: sacral

Talk with me about:

  • Support while making treatment decisions
  • What to expect during treatment
  • Dealing with treatment side effects and quality of life challenges
Susan Hall, chordoma Peer Guide

Susan Hall

Peer Guide since: 2020
Connection: chordoma survivor
Tumor location: sacral

Talk with me about:

  • Support while making treatment decisions
  • What to expect during treatment
  • Dealing with treatment side effects and quality of life challenges
  • Marital relationships
  • Relationships with family and friends
  • Grief and loss
  • Working or going to school during or after treatment

Learn about Susan’s journey to become a Peer Guide »

Chris Jones, chordoma Peer Guide

Chris Jones

Peer Guide since: 2016
Connection: chordoma co-survivor
Tumor location: cervical

Talk with me about:

  • Support while making treatment decisions
  • Marital relationships
  • Relationships with family and friends
  • Parenting a child who has chordoma
  • Grief and loss

Chris also serves on our Community Advisory Board.

Julia Lisena, chordoma Peer Guide

Julia Lisena

Peer Guide since: 2021
Connection: chordoma survivor
Tumor location: clival

Talk with me about:

  • Support while making treatment decisions
  • What to expect during treatment
  • Dealing with treatment side effects and quality of life challenges
  • Working or going to school during or after treatment
Dan Nagridge, chordoma Peer Guide

Dan Nagridge

Peer Guide since: 2020
Connection: chordoma survivor
Tumor location: clival

Talk with me about:

  • Support while making treatment decisions
  • What to expect during treatment
  • Dealing with treatment side effects and quality of life challenges
  • Marital relationships
  • Relationships with family and friends
  • Grief and loss
  • Working or going to school during or after treatment

Learn about Dan’s journey to become a Peer Guide »

Dan Nagridge, chordoma Peer Guide

Steve Olson

Peer Guide since: 2021
Connection: chordoma survivor
Tumor location: sacral

Talk with me about:

  • Support while making treatment decisions
  • What to expect during treatment
  • Dealing with treatment side effects and quality of life challenges
  • Grief and loss
Adriane Rothstein, chordoma Peer Guide

Adriane Rothstein

Peer Guide since: 2011
Connection: chordoma survivor
Tumor location: clival

Talk with me about:

  • Parenting with chordoma
  • Support while making treatment decisions
  • What to expect during treatment
  • Dealing with treatment side effects and quality of life challenges
  • Marital relationships
  • Relationships with family and friends
Kris Stahl, chordoma Peer Guide

Kris Stahl

Peer Guide since: 2016
Connection: chordoma co-survivor
Tumor location: lumbar

Talk with me about:

  • Marital relationships
  • Relationships with family and friends
  • Grief and loss

Kris also serves as a moderator of Chordoma Connections, the Foundation’s private online community.

Talk with a Peer Guide

If you’re interested in talking to someone who has been through a similar chordoma journey, Peer Connect can help. Once registered, we will match you with a trained Peer Guide who has had similar experiences.

Provide chordoma support

If you are interested in providing free, confidential, peer support to others touched by chordoma whose experiences with this cancer are similar, apply to become a Peer Guide. We offer self-paced, online training. 

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