Chordoma Foundation

2018 International Chordoma Community Conference

March 23–24, 2018  •  Boston Marriott Cambridge Hotel



About the conference

Our International Chordoma Community Conferences (ICCC) educate patients and caregivers about the latest advances in chordoma treatment and research and teach strategies for managing the effects of the disease. Since 2008 we have hosted multi-day, biennial conferences, bringing together hundreds of people from around the world to face the unique challenges of chordoma together.


2018 program

The 2018 International Chordoma Community Conference was held at the Boston Marriott Cambridge Hotel. On the afternoon of Friday, March 23 we held our opening session, where patients and caregivers had the opportunity to break into small groups and meet others whose experiences with chordoma are similar. The opening session was followed by a reception and awards dinner with doctors and researchers who treat and study chordoma.

Saturday, March 24 was a full day of programming. Participants had unique opportunities to learn from members of the Foundation’s Medical and Scientific Advisory Boards and ask questions about the latest treatment options and research. The conference focused on an array of topics including:

  • immunotherapy and targeted drug therapy
  • clinical trials
  • emotional and peer support
  • dealing with a recurrence
  • survivorship planning
  • pain management
  • the Foundation’s role in driving chordoma research
  • community fundraising


Watch the live stream


Conference materials

Thank you to the 2018 ICCC sponsors

2018 ICRW sponsor - MGH Harris Center

Northwestern University Feinberg School of Medicine

Penn Radiation Oncology

UCLA Department of Orthopaedic Surgery

UPMC Center for Skull Base Surgery

University of Florida Proton Therapy Institute