Support from someone who has been there can make all the difference
To receive support call (888) 502-6109.
Peer Connect is a free, confidential peer-support program that connects anyone touched by chordoma with another person whose experiences with chordoma are similar; whether they be people who have been newly diagnosed, patients in active treatment, survivors, caregivers, family members, and/or friends.
Looking for support?
If you’re interested in talking to someone who has been through a similar experience all you need to do is register for our Peer Connect Program and we will do the rest. Once registered, we will match you with a trained guide who has had a similar cancer experience and who has had to face many of the same challenges that you now face. All guides are trained by experts to provide a listening ear, serve as a sounding board, and, if requested, suggest helpful information and resources.* The connection between you and your assigned guide may involve only a few phone calls, or it may develop into a longer relationship, whatever is most helpful for you.
* Guides will not serve as health professionals and can not provide medical advice.
Looking to pay it forward?
- Has your life been touched by chordoma?
- Do you remember benefiting from talking with someone who had already been through the chordoma journey?
- Do you understand the questions and fears someone might experience because of your experience with chordoma?
If you answered yes to any of these questions, then you may be uniquely qualified to give back to the chordoma community by becoming a Peer Connect guide. You will be trained in the use of a nationally-recognized communication technique that will provide you with active listening tools and skills for providing support.
Criteria for Peer Connect Guides
- Be at least one year past active treatment or one year past providing caregiving.
- Have strong interpersonal skills.
- Be emotionally ready to participate in a supportive relationship.
- Be willing to commit to an active match for at least six months.
Being part of Peer Connect will be a unique opportunity to:
- Feel connected with others who understand your thoughts and feelings
- Establish trusting relationships
- Explore cancer resources
- Gain coping and communication skills that can be helpful during cancer and in everyday life
- Be heard and supported
Chordoma Survivors Support Group on Facebook
Newly diagnosed patients, chordoma survivors, and family members can connect with others in the chordoma community through a private Facebook group. This close-knit community exists to help answer questions, share personal experiences, and serve as encouragement throughout your journey with chordoma. Email approval from a group moderator is required simply to protect the privacy of the more than 1,700 members and prevent spammers from entering the private Facebook space. Please send an email briefly describing your relationship with chordoma to email@example.com, and you will receive a reply from a group administrator.
*While many members of this Facebook group are involved with the Foundation as volunteers and community advisors, the group is privately run and separate from the Foundation.