Chordoma Foundation

Chordoma Community Map

Chordoma is diagnosed in only about one in a million people per year. By making our numbers and stories more visible, we can feel more connected, and bring much-needed attention to the urgency of our shared mission to cure chordoma. 


3 reasons to join the Chordoma Community Map:

1. Help others feel more connected and supported

2. Ensure the success of clinical trials and other studies

3. Encourage companies to invest in research and drug development

Total number of chordoma patients worldwide in our database: 3,870

Hover over the map to see how many patients in your country are represented in our database.


Be counted! 

Contact Information

The Chordoma Foundation values your privacy and will not sell or share your information with any other organizations.

Map partners

You can empower and give hope to others in the chordoma community

by sharing the story of your own journey.

Share your story »  


1/16/2023 - numbers will be refreshed every four weeks

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